Diagnosis worse than first thought, endo has caused severe damage to bowels and both ovaries, appendix stuck to ovaries and they did say spread somewhere else, just couldn't take it all in.
I can barely hold my bowels and can't apply for anymore jobs since loosing my last one because pain is constant..
They've put me bk on the pill , nefopan, paracetamol, ibuprofen and sertraline for depression because really not coping. Basically said it will be hard to conceive cos damage tht bad 😔
I'm lucky as already have three teenage girls but some days can barely walk or get out of bed.
Feel like I'm letting my kids down because constantly tired or in pain.
Really need some help 🙁
Written by
Paula78
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Oh dear. Sorry you're having a bad time. Now they've told you all the bad news have they talked about treatment? Sounds like you need a really skilled surgeon do an excision of all the endo and adhesions caused.
I'm in pain like you. But now waiting to see BSGE specialist as from reading here I realise I need that team approach. I'm guessing your gynae was just a general gynae and not at a BSGE clinic? As well as bowel referral ask GP to refer you your nearest BSGE clinic for endo treatment. They may not know they exist so find out all the details you can to pass on
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Awaiting diagnosis 
Do you think I have endo? I'm worrying? Nobody takes me seriously:-(
Learning to live with endo
MRI diagnosis? 
Bowel pain / codeine
