People don't get it because they cannot see or feel it. It is not like a broken leg which people understand and know that in 6 weeks plaster comes off and healed.
Plus with endo, because it doesn't affect everyone the same ie some can have it and not suffer, others have it and suffer horrendously, there is no constant, universal, "this is it" symptoms and process that they can grasp.
My mother in law is great at saying "oh the sun is out so sitting out there will cure you" and " vitamins will sort you out" and "surely though it gets easier to deal with as you get used to it". Aaaaarrrgh! I must admit I have replied "if only it was that simple" or "I would have moved to Australia by now if sunshine was the answer!" and "no actually it makes it even harder to deal with as you have to face it day in, day out, with no end to it and not knowing from one day to the next if going to be an "ok" day or a rubbish day". But most of the time I end up biting my lip cos it is just easier than trying explain it again for the millionth time! Yet not easy cos winds me up so much! She just doesn't get it. Oh yes and recently my 4yr old nephew wanted my hotwater bottle to which I had to say, sorry no, to which the mother in law said "yes your aunt needs it all the time to keep warm!" I promptly said "no your auntie needs it due to how poorly she feels and it helps her with pain." But by then all the nephew had heard was keeps her warm he was cold and promptly had a crying tantrum because he couldn't have my bottle! When his mum asked again the mother in law said same thing! Aaaaarrrgh! Just give up with some people!
I've had a friend, who I know didn't mean any malicious to me when she said it but still it wasn't right when she said "if you feeling like this why don't you just ask for a hysterectomy as that will cure you. Forget having kids naturally. There are other options." Firstly she has 2 children naturally no problems, I have none and my IVF is postponed due to issues that have arisen. Yes there is adoption/fostering but I want to try beat my body at something and try having a kid naturally and give my husband a child of his own if at all possible. Secondly, which I did try and explain, that my endo is severe and not only affecting my uterus and ovaries, so yes having them all taken will help in some way, but not 100% cure me as it affecting other areas.
These people are the ones who make us feel even worse when we are unable to do things, get out socially etc and make us feel unworthy, teary and even more useless than we already feel due this evil endo and what it does to our lives physically and mentally!
Sorry I shall stop my rant.
Those that get it and understand and support us are super beings and are rare but special. I hope you have some in your life. x x