I just signed up to this looking for some advice. I've suffered with pelvic pain for almost 7 years now, and finally 5 months ago at the age of 24 I had a laparoscopy and it was confirmed that I have endometriosis. Initially this was actually such a relief to find out it wasn't all in my head and there was a reason I was in such pain! I had been back and forth to various colposcopy clinics, GUM appointments and ultrasound scans with no luck.
However now rather than relief I just feel sad. I suffer with depression anyway, but recently I have been really low. The last year my pain has been at its worst which is why I pushed for the surgery. I am on my third day off work sick this week because I am in too much pain to do anything. Getting out of bed to go to and from the bathroom is painful - let alone using the bathroom itself!
I feel like I've been a bit abandoned now I have a diagnosis. The consultant told me there was no cure and he could potentially repeat the laparoscopy in a few years but until then just take pain killers when needed. It's affecting my life, having a strain on my relationship with my boyfriend and ultimately making me feel awful about myself.
Does anyone have any advice on ways they have learnt to cope with the pain? Or even manage it to a better level? I would be very grateful of any advice xxxx