This has been recommended to me by the bsge centre I am being treated at. I'm pretty sad that I'm at this point, but their reasoning is sensible - I've got very extensive disease on the bowel plus adenomyosis, and they've said that although it would be possible to just excise the endo, this will leave scar tissue between the bowel and uterus. If drug treatments for the adenomyosis don't work, and a hysterectomy is then needed, the risk of damaging the bowel when they have to cut the uterus away from the bowel for a second time is just too high.
Does anyone have a positive story of hysterectomy they can share? I have children and don't want more, so that isn't an issue, but I saw my mother become an old woman overnight following chemo which caused menopause in her mid 40's and that frightens me. I'm 38.