Hi I'm 47 and was diagnosed with pelvic endo 7 yrs ago when I had a hysterectomy for constant bleeding and pelvic pain. All I was told was that everything was stuck down so the took it all. I since found out that pockets of endo were left behind. I have been on HRT since.
Around 4 yrs ago I started having sharp stabbing pains in my left side, which got worse over the years. My GP said it was IBS, I have since had x-rays, blood tests, colonoscopy, gastroscopy all have been clear. I also had a CT scan this year which showed a 5mm nodule in the middle of my right lung. I have also been diagnosed with asthma due to a persistent cough, fibromyalgia due to chronic pain all down my left side.
My GP wouldn't listen to me when I kept saying I thought it was the endo as the pain wasn't in my pelvic area and I had had a hysterectomy. I found a chat group on Facebook with a Dr's factsheet to theocratic endo and printed it off and showed it to them. I am now on a waiting list to be seen by a gyne endo specialist.
Last week end was the worst pain I have had so far, I lost 7lb due to nausea & diarrhoea, hot flushes and chronic fatigue. I am still feeling washed out.
I have read a lot about endo when still having a menstrual cycle but not a lot out there for woman who don't.
I know there are others in the UK how have been diagnosed with Catamenial Pneumothorax and would like to find out more.