Endo pain but no endo visible?: Hi all, So... - Endometriosis UK

Endometriosis UK

70,125 members51,937 posts

Endo pain but no endo visible?

Mewbookitty profile image
6 Replies

Hi all,

So it's been a year since my second lap with removal of endo and I've just been for the results of my pelvic MRI at my endo clinic. So the MRI showed no visible endometriosis so fingers crossed my last surgery was a success!

However, I've still been suffering since the lap with crippling pelvic pain, pain when going the bathroom (both ends), pain during intercourse etc. Sometimes I am crippled with pain it's so bad and funnily enough Worse than before I had surgery. The other aspects of endo headaches, brain fog, fatigue etc i'm still having however I've been told now it could be CFS as I've been getting sore muscles and glands also.

The gynae told me in some cases with having endo and then having it removed it can change the nerves and trick your body into still having chronic pain, has anyone else experience this or know any more information about it?

I'm now being referred to a pain management team and I have to go back to endo clinic in 6 months for another check up.

Anyone's personal experiences with his would be greatly appreciated!

Written by
Mewbookitty profile image
Mewbookitty
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Nikki84 profile image
Nikki84

Hi, give this a read it may be helpful x

fibromyalgiatreating.com/th...

Mewbookitty profile image
Mewbookitty in reply to Nikki84

Thank you 🙏🏻 x

Mewbookitty profile image
Mewbookitty in reply to Nikki84

However, doc said they didn't think I had fibro as I wasn't flinching from being touched? I just can't seem to find any info online at all about long term pain after endometriosis removal x

katie26 profile image
katie26

It's most likely to be the scar tissue.

It's chronic and doesn't go away. I have heaps of it in my pelvis from surgerys and it's just as bad and endo sometimes!! Xx

Mewbookitty profile image
Mewbookitty in reply to katie26

That's helped, thank you. I was worried I was going crazy and imagining the pain. It's a never ending cycle for us ladies, it's horrible! X

katie26 profile image
katie26 in reply to Mewbookitty

I was referred to the pain management too following second lap and continuous pain. It doesn't go away. It's a chronic condition but the pain management clinic should help with lots of therapies and medications. Xxx

You may also like...

First Lap, no endo visible.

months for this and have been in agony for about 5 year (that has been chronic pain). I'm after...

Severe pain, endo mentioned

appointments where GP's have dismissed my pain & made me feel silly, my GP thinks I may have endo....

nerve pain instead of endo?

ablated the endo. I still believe I had endo on my bladder and bowel as I have so much trouble with...

Endo related back pain?

family. For the last 3 years I have struggled with lower back pain/leg pain that is pretty much as...

Adenomyosis and Endo, Back pain?

Currently 4 months out of surgery to remove endo and adhesions and been told I probably have...