Hi everyone, I was diagnosed last April. I have a 4.5cm lesion on the left lung in between the two lobes. I started coughing up significant amounts of blood which lead to my diagnosis.
I was put on Depo and Zolerex which was supposed to stop my periods. After they continued and further CT scan showed two more lesions on the lower left love and one on the right I decided to have a full hystorectomy (ovaries removed). I started on Letrozole back in I think it was July last year (also I think called Femara) which is used by breast cancer patients to stop any estrogen.
The coughing has definitely got better but I still cough up blood during the time my period would be due and have nausea and diarheorra (usual symptoms for me before the op) and it has been 3 months now.
I am very tall and slim, aged 39 and have had extensive Endo in my pelvic area for years.
Surgery to remove the large lesion is not an option at this stage because of where it is placed and the size of it. They say they would have to take my left lung out completely as it us just too big. Not an option for me with two young children! So CT scan coming up and I am hoping it has at least shrunk a bit. I am grateful I don't have lung collapses but not sure why I haven't given the size of the lesion? I have had asthma all my life and as a result have kept very fit and heathy to keep it under control and wonder if that has any bearing on why? No idea. Anyway have a great endo specialist here in New Zealand so I am sure we will work something out!