Endometriosis UK
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Very worried

Hi everyone

I had a laparoscopy 6 weeks and 4 days ago I was diagnosed with severe endometriosis I had the mirena coil fitted at the same time as lap I was constantly on my period for the first 5 and a half weeks but then it stopped thank god and I felt like my normal self again but on Wednesday this week I started having horrendous cramps and pain again and light bleeding but today the pain is much worse I've struggled with walking and just sitting up I'm just sooo worried that something is wrong does this sound normal?? I thought having my Endo removed and adhesions removed would help my horrendous pain but obviously not I'm just so tired of the pain it's just like it was before I had my op if not at times worse are ladies with the mirena more susceptible to ovarian cysts???? any help or advice would be great as also finding it difficult to talk to people about it because they really just don't seem to get it and understand 😖😖😖😖

5 Replies

I would get a doctor to check the mirena is still in the right place xx


Hi you can get a lot of cramping with the coil while it settles in. Are being seen by a general gynaecologist or at a BSGE endo centre?


I'm seeing a general gynaecologist I think xx


Hi if you have severe endo you should only be treated at a BSGE endo centre. This is nhs guidelines. If you feel that something is wrong go to GP. Ask them for a referral to a centre.


I still haven't had my 6 week check at my doctors yet because the earliest they could fit me in is next Tuesday so I'm going to get it checked next Tuesday anyway Hun x


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