Zoladex 7 months on: Hi I have been... - Endometriosis UK

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Zoladex 7 months on

Norman1970 profile image
5 Replies

Hi I have been diagnosed with stage 4 endo I'm waiting for my appt to see a Specilist but I've had zoladex now for 7 months and I'm still having periods, is this normal? Advice appreciated, thanks ladies

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Norman1970 profile image
Norman1970
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5 Replies
Flare profile image
Flare

Hi sweet, I'm not sure it's normal. For the first couple of months I still had periods but they then stopped.

If it's lighter or alleviating the pain it's a good thing. I hope you're well x

moxyfilms profile image
moxyfilms

Hi, so sorry you're going through this. Can you or someone clarify this for me but I thought they can't put you on Zolodex any longer than 6 months in the UK?

This doesn't seem normal to me... I thought the whole point of it is to induce chemical menopause. If you're still having a cycle what are they giving you, saline solution?! Dreary-o. I'd raise that, but let ladies with actual Zolodex experience answer. I keep refusing it.

I hope you're ok xx

JeanOsborne profile image
JeanOsborne in reply to moxyfilms

Hi as far as I'm aware you can have Zoladex for longer so long as you have add back hrt with it to protect heart , bones etc.

As for periods , Zoladex doesn't always work for everyone so I would question whether it is worth while staying on it.

AkiBoo profile image
AkiBoo in reply to moxyfilms

Hi, I am sorry to hear you are still bleeding. Maybe contact the consultant and see what he says? Maybe call his/her secretary to pass the message?

I have been on decapeptyl, which is a cheap version of Zoladex?, for 1 year and 5 months now.

My consultant who prescribed it said that I can be on HRT if I have too much side effects but I don't suffer mush from hot flashes so not taking HRT. I am taking calcium though.

The consultant who will be operating on me said that decapeptyl is licensed to prescribe for 2 years. So it was suggested I am on it until the surgery.

I had 5 months of decapeptyl. It worked for about 6 weeks, and then my periods returned and the pain got worse with each bleed until I had a random bleed a week after the 5th injection and had to go to A&E for pain relief. The gynae told me that for reasons unknown, for some women, these injections just don't work :( and don't stop your periods. They took me off the HRT and gave me norethisterone to try and stop any further bleeds.

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