Pleased to have found this site

Hi Everyone,

I am quite new to this site, and this is only my second post so far but I just want to say how thankful I am to have found this site and the wonderful people on here. I was diagnosed with Stage 4 Endo and Adenomyosis in March this year and I have felt like I've been on an emotional rollercoaster since then. I am pleased to have a diagnosis and yet this hasn't brought the relief I was expecting after so many years of the tests coming back negative and the doctors telling me I'm fine.

Whilst I am pleased to know what is wrong with me I am disheartened by the treatments choices. I wanted to be able to tackle this with natural treatments, diet and lifestyle changes and was feeling so positive and that it would be achievable.

However, yesterday I contacted the hospital that did my Laparoscopy and was told that due to the extent of the endo and where it is located they were not able to do any removal at the time of the procedure. I do have an appointment at a BSGE centre on 20th June to discuss my options, I'm just worried it will be the very things that I don't want to hear!

I have found over the last few months that my emotions are all over the place! One minute I am fine, the next I want to cry. I do have very supportive family and friends but I still feel very alone with this. I have read through many post on here and I whilst it is sad that so many others are feeling the same pain and emotional struggles that I am, it is also comforting to read the posts on here from others as it makes me realise that I am not alone and I can reach out if I need to. So thank you to you all, it really does help.

Wishing you all the best

Lou x

3 Replies

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  • Hello hunni,

    I am so sorry to hear that you're going through a rough time :(

    I just wanted to say, it is so lovely that we can all come together to support each other on this site.

    Don't be afraid to drop me a message if you want to talk hunni,

    Lots of love xxx

  • Thank you very much, its appreciated xx

  • Not a problem :) xxx

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