I went to see an endometriosis specialist today who is associated with one of the endometriosis clinics. It was the best £150 I have ever spent. He was amazing and just listened to me. Said there's no question about it, I have endometriosis. Said there's no point having a diagnostic laparoscopy with general gynaecology. He's referring me to the endometriosis clinic in Cardiff. Have to have transvaginal ultrasound thingy too. The waiting list for surgery on NHS is 9 months which is a bit rubbish but I'm not complaining too much as I feel like I can finally see the light at the end of the tunnel.
He suspects deep infiltrating endo of the bladder and bowel. Which im not surpised about to be honest. Wanted the names of the gynacologists i have previously seen and actually rolled his eyes and what they previously diagnosed me with. He also said 4 out of 5 people who have the endo removed it doesn't come back. that is most reassuring thing I've heard.
Anyway without this message board I would have never, ever have considered paying to see this guy privately. so thank you to everyone here who suggested doing this because it has made a huge difference. I now know whats wrong and i can stop going crazy with it all and self-doubting all my symptoms.
Once again Thank you all xxxxxxx