THIS IS A LONG ONE, SORRY : /
When I first spoke to my GP about getting referred to a BSGE centre he said he couldn't unless endo was diagnosed. I wanted to go to a BSGE centre because I really didn't trust the "general gyne" I was assigned to.
She told me at my initial app that I didn't have endo, non of my symptoms were of endo. And even if I did you don't get endo symptoms leading up to your period. Only after!!! Then told me the best way to get rid of it was to get pregnant!!!!
That's exactly why I didn't want her doing my operation but I had no choice but to go through with it. Low and behold they found endo on my ovary and bladder. Abnormal cyst in my cervix. They burned ti off my ovary and left my bladder incase they damaged it, not bothered about the abnormal cyst apparently!!
So I called them a couple of weeks ago to ask them to refer me to a BSGE centre to see a specialist about my bladder and to speak to them about it possible affecting my bowel and chest.
I received a letter last week telling me it isn't "severe enough" for me to see a specialist!! Even though the NICE guidelines state Refer women to a specialist endometriosis service (endometriosis centre) if they have suspected or confirmed deep endometriosis involving the bowel, bladder or ureter."
they have also covered their ass in the letter by putting "they only noted a couple of very tiny deposits of possible endometriosis that don't merit a referal."
So they told me it was endo after my operation and are not telling me its "possible" endo. SO FRUSTRATING!!!!!!!
I have a feeling they are going to try and fob me off by saying its not deep even thought they don't know it isn't!!!
Is there anyway I can make my GP deal with this now so I don't have to deal with that incompetent gynaecologist again?