Diagnosed with Endometriosis : 4 days ago i... - Endometriosis UK

Endometriosis UK
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Diagnosed with Endometriosis


4 days ago i had a laproscopy  due to 3 years of unexplained bleeding and pelvic pain ive gone through constant tests of ultrasounds to pelvic mri's which showed other abnormalities which they removed last year i was still bleeding i thought all hope was lost when they failed to give me further tests until the gynecology assistant who i at to see wanted me to have a lapro to see whether endometriosis was causing the problem and ive not long ago had my surgery and ive been diagnosed with endometriosis 

5 Replies

Hey, I'm glad you were able to persist and that you have got a diagnosis. I hope it helps a little at least to know what it is even if it's not a nice thing to have. X

Hello, I'm glad you have some answers, where was your endo found and was it removed?? Or are you awaiting another laparoscopy,??

symcurly in reply to Tboag

It was found in the Douglas. Pouch  I don't know if they removed it there and then but I was bleeding down below after the lap I have yet to see them at another appointment for further discussion and thank you When did your get diagnosed and what location was yours in ? 

I was diagnosed in march I had a nodule behind uterus and it was on uterosacral ligaments and ureter, it was removed, and I had Adenomyosis and had hysterectomy in July for that, unfortunately I'm still on pain, and am now seeing a specialist at a bsge centre and awaiting another laparoscopy, I'm currently on zolodex Injection s

Are you under a bsge centre, if not get your gp to refer you, as your endo us in the pod protocol states you should be operated onat a bsge centre, xx

You've definatly been through the wars I feel for you especially if your still in pain and have had hysterectomy that's what I'm scared of losing  I'm not with any bsge centre and I will get me gp to refer me to one  thank you for advice I appreciate it 

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