Scared: Hi I was initially told I had endo... - Endometriosis UK

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kparsons profile image
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Hi I was initially told I had endo 17 years ago at my lap sterilisation. At that time I had no symptoms. During the last 7 years or so I've developed symptoms and had many admissions to hospital due to pain. I've also been given lots of different diagnoses despite me telling them my previous history. I have now managed to be referred to an endo centre and have a lap next week. Whatever is wrong with me has affected nearly all my life and I have lost at least 2 jobs due to sickness levels. I just want to live a normal life and I am pinning all my hopes on this lap to get me sorted. I am just so scared that they won't find anything as my consultant said he had to tell me that in 25% of cases it can just disappear on its own. Has anyone else had this happen. I just want my life back.

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kparsons
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Simo7 profile image
Simo7

Hello! Ok so you've had lots of admissions for pain. So even at the worst scenario they don't find anything then they have to do more tests to find a cause. There clearly is something wrong so be prepared to get them to work for you to find a cause. It's your life that's being affected.

I've never heard of endo' just disappearing but I'm not a Dr. But I've heard of gynaecologists not seeing what is there due to poor training. Do a little research into your surgeon & good luck xx

JeanOsborne profile image
JeanOsborne

Hi Hun , endo does not just disappear. The only way to get rid of endo is with excision. The fact that you're at a endo centre and your consultant has said this is really worrying. I would suggest you seek a different specialist.

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