I had a lap to remove stage one endometriosis in August last year, this was my second lap in a three year period. The first one found nothing but was done by a general gyne and the second lap was in a BSGE centre, my consultant has been brilliant she removed stage 1 from multiple places, my left ovary, pouch of Douglas and I've seen her every three months since. For the last 4 months I've been feeling terrible, the pain on my right side has been unbearable, it goes right into my hip and I have horrendous back pain, my consultant moved me from tramadol to gabapentin to help and I take norethisterone back to back. I don't bleed anymore, had the coil fitted during my lap but I'm scared the endo is back, I'm struggling to remember when I last felt well, I feel so alone and my pain at times means it hurts to walk and sit down, I get terrible migraines on the days I reduce the gabapentin and the pain can be so severe that it makes me physically sick. I feel like I'm trapped in a body that doesn't let me do the things I love, I'm scared for my relationship, my job and pushing away everyone because I'm always ill! My consultant mentioned a chemically induced menopause and it's the last thing I would consider, I'm constantly getting to grips with side effects and feel like I would be swapping the pain for no real benefit to my quality of life and I'm only 26!
Where am I supposed to go from here? Do I need more surgery? I'm terrified of feeling like this forever? What is wrong with me?!
Has anybody had a similar experience, I don't know where to go next?
Sorry it's a bit of a rant but I feel like this is the only place I can talk about it, where people understand