Endometriosis UK
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Just wanted to share my story from the age of 14 I have suffered from severe period pain where I find it hard to funtion. I just wanted to curl up in a ball and cry. Over the years missed school and work days because I couldn't stand up. My periods are not heavy however, I get bad pain in my lower back left leg and hip a week before my period along with lower stomach ache. I also had random cramping stabbing pains on my left ovary and random brown spotting during the month. I also experienced IBS symptoms but only on my period the rest of the month was fine. Over the years I have been on so many pills even tramadol and nothing worked. I went on the pill from the age of nineteen . It wasn't until I was in my late twenties I had a Laproscopy and was diagnosed with polycystic ovaries. The doctor did say he couldn't perform a hysteroscopy because of scar tissue. I was then put on cerezette pill that I took back to back it stopped my period for years. I came of it when I was thirty four in hope of falling pregnant. In the mean time the monthly pains returned and left me in agony. I was back and forth to the doctors about the pain as well as not falling pregnant. In the end my husband and I went through all the fertility tests. Nothing could be found and there was no obvious reason's for not falling pregnant. Even with my polycystic ovaries they would come and go and all my hormone levels were normal. The scan last May showed 2 eggs being released. I was recommended to go for IVF I was nearly 40 at this stage. I decided against it as I new this pain wasn't normal and wanted some one to find out what was causing it. Another year down the line I kept going back to the doctor and sent for more scans. In the end I sent letters to the doctors begging for help. In the end I went to see a new young doctor who listened to me and referred me to a gynaecologist who specialised in endemetrosis. I had a laparoscopy 3 weeks ago and he found small bits of endemetrosis on my sacrual ligiment. On my discharge letter it said he removed it as well has puncturing ovarian cysts and removing a polyp. I also have a retroverted uterus and stenosis of the cervix. He also performed a

d and c. I am due to see the consultant in 3 weeks for a catch up. I had my period this week I won't lie it was painful but a different pain proberly due to the op and still healing inside. On the positive I didn't experience the pain in my back back and leg this time or any ovary twitching/stabbing sensation. I take mefenamic acid and cocodomol for the period pain doesn't get rid of it but does ease it a little. I will be 42 in a few months and are hoping by then the pain diminishes as it is still early days.

I am hoping my experience helps someone else out there to get help sooner rather than suffer in silence. I had suspicion along time ago I knew what the problem was but no one was listening. It has only taken 28 years.

As for the Laproscopy that went well had a bit of discomfort for a few days but nothing compared to previous period pain just took pain killers for a few days and took it easy. My husband changed my dressing for me as I had stitches in 2 places and I am very sqimish. To be fair the stitches were tiny and only a couple of stitches in 2 places. These were removed by a nurse a week later that did sting but over quickly.

Thanks for reading

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