Diagnosis Lap results and Cerazzete

[miss_wendy]

After 11 weeks I finally got my diagnosis laprascopy results. I went to see Mr Morris at Cromer Hospital who is one of the Endo specialists I've seen.

He explained my lap results showed I have a lump of Endometriosis in my Pouch of Douglas which has adhered to my womb and bowels.

He has advised I go on the mini pill (Cerazzete?) for pain management but after trying the combination pill, coil, injection, and patch I am concerned and actually really not sure I want another drug messing me up... no contraception has agreed with me - vomiting, depression, weight gain, extreme pain.

He said this is just while I wait for an MRI scan to see the extent of the Endo. Would it matter if I didn't take the pill? My partner and I don't have sex as it's painful and I make do with my hot water bottle for the pain during my periods.

[MeganBee]

Hi, totally agree with Lindle.

You need to see an endometriosis specialist at an accredited centre.

All the best.

[nicolajones63]

The doctor Wendy saw is an endoscopy specialist and Cromer hospital is a centre of excellence. I myself found him to be very good.

I have the same problem as you Wendy and can't tolerate any kind of hormone treatment and also had it on Pouch Of Douglas. after trying different hormone treatments at a previous hospital I pushed for an operation and he agreed willingly so it might pay for you to just ask if that's a possibility for you. I also agreed to doing a drugs trial with his registrar so that may be another option for you. I'm surprised he's suggested an mri for you as he never suggested it to me x

[miss_wendy in reply to nicolajones63]

I'm surprised that I'm having an MRI after the lap, if my Endo could have been seen without a lap then why wasnt that my first option? :/

[miss_wendy]

Sorry I wasn't aware. Thank you I will have a read. Honestly it's a bit scary the thought that it's on my bowels.

[miss_wendy]

I've had a look at the list and my hospital N&N is on the BGSE list. It's all very confusing to me. Is my Endo centre not right for me? Why do different Endo centre specialise in different areas? My doc did say that maybe I'd need to speak to his bowel specialist. I'd really appreciate your advice.

[listofproblems]

I have not been diagnosed yet but am getting on really really well with Cerazette! My heavy 2 year long period has finally stopped and I no longer have periods, I am out of pain and my "IBS" is slightly better!

Hope I helped!!

[miss_wendy in reply to listofproblems]

Thank you, I know everyone reacts differently. What other contraception have you tried? I'm concerned that it says it only works for those under 11st so as I'm 13st I don't know if it will do anything for me.

[listofproblems in reply to miss_wendy]

II've tried the implant but it made me loopy

I've tried the coil and bled constantly for 2 years (not sure if that was endo or not) so got that removed and now I'm on Cerazette!

That's not true at all, I'm well over 13 stone and getting on with it absolutely fine xxx

[miss_wendy]

Oh thank you Lindle that's good news