Symptoms?

[AG22]

Just wondering what symptoms everyone else has? I have a gynae appointment in 2 weeks and I feel like I have 100 symptoms and feel like they might not take me seriously if I reel a whole list of symptoms off to them! Just looking for some reassurance really! Thankyou.☺️

[Tboag]

Hi, I would write a letter explaining all your symtoms, my main ones are pains in lower abdomen including groin, hips pelvic bone, plus ache back, pain in legs mainly inner thigh, tiredness, constipation, pain after sex, feeling sad,

What are yours,

[Tboag]

Forgot a few, lol, pain or uncomfortable when bladder full, then pain on first flow, pain when passing wind whils weeing,

[AG22]

Well I've always had really bad periods - longer than a week, heavy, clots and extremely painful, the first few days I literally cannot get out of bed or eat or anything really as its so excruciating! And painkillers never help. I'm so tired all the time, some days I don't even want to get out of bed! Lower abdo pain, also stabbing pains in my groin area and also round the area where my bowl, intestines etc are which is very painful! Nausea is a daily struggle and some foods make it worse! Intercourse is also extremely painful so I try to avoid it which I worry will put strain on my relationship! My boyfriend says he doesn't mind but I still worry! I've tried two oral contraceptives and also the depo injection and no change unfortunately! Sorry for the lengthy message and Thankyou for the replies!☺️

[Karinyaa]

Hi, AG22! I always feel great sorrow for women suffering from any kind of pain. This is because I was in the same position one day before got rid of it hope forever. I've been married for 10 years to a wonderful man, 2 of which were spent in making attempts to conceive naturally. Any fertility issue destroys you even from the diagnosis level. And alongside with the desire to have children this is also the great temptation of getting rid of the dreadful disease symptoms which poison your life.

I cannot say that I had all the possible symptoms of endometriosis but still being few they really brought me difficulties. Firstly constant pain seizing only day or two in the week. Secondly very painful intercourse up to my screaming because couldn't endure it very often. I don't think sex may bring any satisfaction and relaxation when the only thought you have is just "When all this is going to stop?" No thoughts about getting pregnant in such moments.

It took us a pretty long time to speak about my endometriosis now just like of the thing from the past. As for desire to have children - failed rounds of IUI, ICSI, and the successful 3rd cycle of DE IVF in biotexcom due to which we finally achieved pregnancy.

To my mind you should talk about all your symptoms with your doc. He must be a good professional concerned of lots of things women could face while having endometriosis. What if you're not panicking but just have all of them? Stress also is indivisible here, but still he'll clarify everything. So be ready to be open about every single thing which bothers you, don't be shy - it's the doc's work.

Wish you huge luck with your initial steps xxx

[Scooteeder]

Hi,

Just read your question. It's not at all silly to ask about symptoms, as many people worry about them. They are a sign that something is wrong with your body, so it is common sense to get them checked out.

The replies you have already got, here, are very useful and full of good information - especially the one by "Lindle". Still, it's prudent to be aware that everyone's experience of Endo may be slightly different, and that different symptoms can be related to the nature of the Endo a woman has, as well as to where it is positioned in her body. A very good, and thorough, explanation of Endo symptoms and where they occur can be found at:

endo-resolved.com/symptoms....

It is important to note that there are different types, and severity levels, of Endo which again can cause a difference in the nature of symptoms experienced. Whilst some women can have pretty bad Endo but feel no symptoms, this may not be common, and for many, the worse the Endo is (and the more extensive its growths) the more the symptoms. Endo comes in three main varieties:

1. Ovarian cysts - usually called "chocolate cysts" because of the old blood that they contain, which is red-brown in shade. They are also known as Endometriomas.

2. Superficial Endo - this is Endo that only grows on the surface of the pelvic wall, or other pelvic organs. It can have a fine, powdery appearance or look like small blood splatters, and the lesions are no more than 5mm in size. This type can be treated by laser removal (diathermy), or by excision.

3. Deep Infiltrating Endo - this one is the REALLY nasty one! this sort of Endo causes large lesions, or nodules, that grow into, or grow completely inside, the pelvic wall and other organs within the pelvis. It is often hard to detect on scans such as Ultrasound, and is sometimes missed during Lap surgery because unskilled surgeons do not know how to deal with it. This type of Endo must be treated by radical excision.

In my own case, I have Endo (symptoms took over 9 years to diagnose - finally diagnosed correctly in 2011). I have had 4 surgeries including radical excision because I have Deep Infiltrating Endo. My Endo affects my Pouch of Douglas area, Uterosacral Ligaments, and is close to bladder and bowel. As a result, I suffer near permanent lower back pain, spinal pain, front pelvic pain, bloating, cramping, heavy and clotted periods, diarrhoea and constipation, feeling of needing to pee a lot, pressure on bladder, fatigue, pain when walking, pain when bending and stretching.

I think from personal experience that maybe you might benefit from keeping a symptom diary. In this you can record symptoms - when they occur, where they occur, what they make you feel like, what they prevent you doing or make difficult. Also, see if you spot any cycles to our symptoms (e.g. they are worst around menstruation) that highlight a gynae nature to your illness. Take the diary to all appointments with you, to refer to. Also, prepare well for appointments; make lists of important questions that you need to ask and have answered, so that you won't forget what to say when with the doctor. It really DOES help to stay calm, clued up and in control!

Hope that some of this helps you, or indeed anyone else reading it. Wishing you all the best. E. x