Endo symptoms

Hello, I was wondering if anyone can give my any idea about the symptoms and whether I have a possible cyst, endo or if I am just totally normal?

So for the last 6 years I have had a sharp pain which I believe is in my left ovary. This is getting more frequent nowadays and can be almost daily and is very painful. I also have severe hip/ pelvic pain and sometimes its agony. Sex is also painful (sorry tmi!) I sometimes get period cramps sometimes 2 weeks before my period starts and my periods are quite painful. the tops of my thighs really really ache and i have back ache.

Sometimes my bladder feels full when I have this sharp pain or when my bladder is full the pain increases...not sure which is causing which really regarding bladder. This can cause me to feel like I need to go more often.

I feel like most days I have a problem and am in pain.

I am booking a doctors appt today but wondering if I have nothing to worry about and this is normal.

Any advice would be greatly appreciated!

Thank you so much xx

5 Replies

  • You're doing the right thing by looking into this issue - it's not normal that you should experience those problems.

    Hope you get the answers you're looking for x

  • Hi,

    I have severe endo and I am awaiting my 3rd surgery. I also have PCOS.

    My symptoms are severe back pain (mine does radiate down my legs at times), chronic hip/pelvic pain, severe period pain, fatigue, dizziness and I also get pain after sex - it seems to aggravate my endo. I have problems with my bowels - pain/frequency/urgency etc. I don't have any bladder symptoms.

    It is not normal to be in pain all the time, or every month. Your GP might send you for an ultrasound to rule out cysts. You would usually need a laparoscopy to diagnose endo.

    I hope you get to the bottom of it.

  • Hi I have an 11cm endometrioma cyst on my left ovary which is also pressing on bladder . I also experience the sharp pain which seems to start in ovary then radiates to hip and sometimes down leg. Ask GP to send you for a internal ultrasound to check for cysts. Please be aware though endo doesn't normally show up on ultrasound unless it is very deep. If once you've had a scan ask to be referred to a BSGE centre where hopefully you will be offered a lap. Which is the only real way to diagnose endo. Good luck.

  • Thank you very much for your replies... I had been to a couple of doctors who said it was normal so i was starting to convince myself but I went to the doctors this morning knowing its not! I saw a nice female doctor who said it sounds like endo but would like me to try the coil first and go from there. Anyone else been on the coil? thank you again xxx

  • The pain two weeks before your period could be the egg being released. As you have inflammation in this area the addition of extra fluid, with possibly some blood, from the egg release could easily add to the inflammation and hence the pain and cramping. A few people now exactly when they ovulate as they feel it.

    Pain is never normal, it is a sign of some inflammation and should be investigated. The symptoms you describe could easily be endometriosis but there could also be other reasons for it. Have you thought about nutrition, a vitamin B complex may help with some of your symptoms as would some extra magnesium. Best to consult with a good nutritionist who understands the disease.

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