After very frustrating visits to the gp and almost begging a referral to see a gynecologist (I was told that my pain is caused by very active ovaries - what does that even mean??) I had my surgery in 2013 and was lucky to have a minor case of endometriosis which was almost removed except the bit on a kidney. I had an ok recovery in general and didn't have much thought about it. However my symptoms persisted and even got worse. I was then offered what felt a dozen of different contraceptive/treatment options (no period, no endometriosis eh?). For a person who cannot remember to take food supplements I decided to go with a Mirena coil (5 year hassle free sounded really attractive). Oh what an experience! Wouldn't wish it to my worst enemy. I still have a coil (for almost 1,5 y now) and it seems that it never settled (my doctor was very persistent to keep trying). I feel bloated, my lower abdominal feels swollen, and oh my dear pain. It's so tiring and frustrating as I don't know anymore whether all my symptoms are caused by endometriosis or the coil?
I could have never imagined something like this could have such a negative impact on everyday life! Experiencing all the above 3/4 of the time is depressing. I try to ignore it most of the times (sometimes by wearing loose clothes), and only people close to me know.
I had to leave the work early today because the pain became unbearable. And I get so guilty and that it was not a good enough reason to go home.
I am will 30 in a few months, is this how my life will be from now on?
Does any of you have similar problems? How are you coping with long term effects?