Dont know what to do for the best.... - Endometriosis UK

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Dont know what to do for the best....

mzld profile image
mzld
3 Replies

Hello,

I have been suffering with endometriosis for 6 years now. It started with pain during sex which got more and more and eventually me and my partner couldnt really have it anymore. Doctors kept telling me nothing was wrong until I went privately and they immediately knew I had endometriosis. I have had two laproscopys, the last one January 2015. Neither of these reduced pain during sex and after the last one ive actually got worse.

After the last operation it took me over 6 months to recover, I had severe bladder pain and lots of new pain during the day. Ive been to see an endo specialist who gave me two options: either have another laproscopy or go into early menopause. I really didnt like either option at this point.

I started to see a sexual therapist with my partner of 8 years as no sex has obviously put strain on our relationship but he has been so understanding. I have been told by lots of professionals that the pill (Marvelon) could be suppressing my sex drive. I think the reason I dont want sex anymore is a combination of being on the pill since 15 and the fact that sex hurts everytime so has become unpleasant for me.

I decided a month ago to come of the pill to see if my sex drive increases. Last time I came off I didnt bleed for 7 months and then only bled as the coil was put in (big mistake). I thought I wouldnt get endo pain if i didnt bleed. Well its been a month and I think my sex drive is on the rise but my first bled was painful and after actually having sex im in severe pain. Since having sex 5 days ago ive been in constant pain and im all bloated and swelled.

I hope I am right in assuming this is all due to my endo and not something else? I feel like its a lose lose situation. If i go on the pill I have no sex drive but when im off i have severe pain. I dont know what to do anymore there seems to be no answers even though ive seen so many different professionals.

I would really love some help, I dont know what to do.

Thanks

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mzld
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3 Replies
mzld profile image
mzld

Lindle thank you very much for your response. I have been to see a specialist in London.

Bethleah profile image
Bethleah

Hi hun.sorry you're having a tough time. Did you see a bsge specialist as it sounds like that's what you need. Have you tried looking into your diet to help reduces some of the symptoms. It has helped many women (not me unfortunately) but it may help. The lap may help. I've had 3 so far. You may want to consider complementary therapies to help not just with the physicals stuff but the mental and emotional stuff too. Hope your partner is understanding.x

mzld profile image
mzld

Hi thanks for taking the time to reply. Im trying homeopathy at the moment and im seeing a nutritionist whos herself has suffered with endo this week. I am trying to change my diet as i agree its very important. My last lap was 1 year ago and I think its so soon to have another one? The guy I saw in London was bsge specialist and he gave me those two options. no one has ever given me an mri though which i find interesting? only ultrasounds. x

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