Last year I had a diagnostic op, during which it was discovered I had loads of endo as well a signs of adenomyosis. I'm told all the endo was all successfully removed, but my quality of life has not really improved due to what I am presuming to be the on going adeno symptoms. I'm still in so much pain and really exhausted all the time. I received no support beyond being told I probably have adenomyosis, and I was basically left to just get on with it. I feel really helpless and I don't know what to do from here.
It's occurred to me over the last few days that I should get a second opinion to confirm further this diagnosis (though i know official conformation can't happen until post hysterectomy) but I'm not sure who to ask or where to go. I've been reading about how certain scans can give further insight into weather or not someone has adenomyosis, which i think i would like to explore further.
Does anyone know of any gynaecologists who specialise in adenomyosis? I live in north london but i am happy to travel.
Has anyone been in a similar situation? what were your experiences?
I really look forward to your replies.