I have endo and had a lap to have it excised in October. This was done in a private hospital but by the lead consultant of a BSGE hospital. Went back for my post op review last month as my pain had only reduced by about a quarter post op.
My consultant referred me for an MRI to look for deep infiltrating endo that can be missed during a lap. They didn't find any round my bowels or bladder, even though those still hurt, but did find it in my uterus so possible Adenomyosis. Has anyone else with Adenomyosis had referred pain in their back and other areas? Did zoladex/ hysterectomy reduce pain in areas other than uterus? It just seems odd that out of my lower body my uterus seems to hurt the least! I know from tooth ache that nerves are funny things and where you feel the pain isn't always the source.
I am having an injection to shut down my uterus temporarily (so I'm presuming that's zoladex or prostap?) and I'm having HRT at the same time to minimise the side effects. I think this is to see if the uterus is having an effect on my other symptoms. We didn't discuss after the injections the next step, but from research it looks like the only solution to Adyenomyosis is hysterectomy.
From discussions on this formum I'm really not looking forward to the zoladex and am worried it will turn me into a monster and still not help with the pain
looking for good news stories please