Endometriosis

[sarahvincent95]

Hi. Can someone please help me. I was diagnosed before Christmas last year that I have survivor endometriosis, I was then on prostap injections for 6 months. After that my tummy pains are still the same. I was meant to go under the anaesthetic to have a Mariana coil to be put in but they have cancelled it once again. Can someone give me advice on what I should do or their experiences please. Thank you in advance.

[Glyfada]

Hi, I was on the same injections 3x6 months but they didn't really help with relieving the pain, they only postponed everything for a while... I tried everything and the only thing that really helped me was cutting all dairy products and starting yoga, the two helped a lot with the pain et al but they're not a cure for endo. But I believe that helped me much much more than the injections that have very heavy side effects. Hope this is helpful, good luck!

[sarahvincent95 in reply to Glyfada]

Thankyou so much. If its ok for me to ask. Are you on any meds or concentration as they have advised me to go in Mariana coil x

[Glyfada in reply to sarahvincent95]

Hi, I'm not at the moment, I became a mother a year ago:-).

[sarahvincent95]

All of my tubes and its spreading towards my kidneys.. I live in carmarthenshire

[sarahvincent95]

Can I be cheeky and ask how do you know this as this was not explained to me by the gynecologist?

[Brownlow in reply to sarahvincent95]

I doubt if your gynaecologist has the breadth of knowledge that Lindle has and also some other women on this forum who have become patient experts! Strange but true.

Many gynaecologists and GPs are also unaware of the existence of accredited endometriosis specialists.

[Philosophical]

Hi, I live in the same area as you and due to have an operation later this month to laser out the endo and to put in the coil. I am nervous. I have tried so much over the past 16 years and nothing has worked yet but am hopeful. I found physio helped but as I've just moved to this area I have not found a class here yet.