I just wanted to share (with their permission) this excellent post. It was written by a lady in the US, from what she discovered whilst trying to get good care for her daughter who has endometriosis.
Sadly all these same issues apply in this country and are happening all over the UK every day. Obgyns are what we would refer to as a "general gynae" here.
"Would you find this acceptable?
Child has multiple splinters in her finger and hand and the Doctor:
A) Looks at the finger and says “There’s a splinter in there”, but does nothing to remove it.
B) Amputates the entire finger (but ignores the splinters in the hand.)
C) Prescribes medication that will shrink the splinter, but the side effects are far worse and permanently disabling.
D) Burns off the tip of the splinter on the finger (leaving the bulk of the splinter), and declares that it is all better.
E) Actually removes the splinters from the finger & the hand.
Believe it or not, the above A-D are accepted ways to treat endometriosis. Obviously they do not work, yet doctors throughout the United Stated have been trained to do A-D, and then they are mystified when their patients continue to suffer.
Why should you continue to read this? Whether you realize it or not, someone you know is suffering with this disease and if you take the time to read this, you will understand a bit about how to help them.
A) "Looks at the finger and says “There’s a splinter in there”, but does nothing to remove it."
This is what happens when you have endometriosis and you go to your trusted OBGYN and they do a Laparoscopic procedure to “see” if you have the endo, but they aren't qualified to remove it, so they just go in and say “Yes, you have endometriosis” or worse, their training is so limited, that they actually miss the endometriosis and say “There isn’t anything in there, I don’t know what is causing your pain, it must be in your head you need to see a to see a shrink.” Note: This is not the Doctor’s fault, this requires specialized training.
B) "Amputates the entire finger (but ignores the splinters in the hand.)"
There is a huge misconception that hysterectomy will cure endometriosis and this is actually taught in medical school because the first patient ever diagnosed with endometriosis was cured that way. Recently we have learned that endometriosis can exist anywhere in the body, therefore a hysterectomy only “cures” endo for a select few women, but it is the equivalent of cutting off the finger to remove a splinter.
C) "Prescribes medication that will shrink the splinter, but the side effects are far worse and permanently disabling. It’s very common to prescribe a type of pill that forces a young girl into menopause in order to stop the periods from coming and shrink the endo."
For most women the side effects of being on this type of medicine is horrific and permanent. Often there is no relief from the endo, so they end up worse than before. (Note the permanent side effects) There are a few women who have benefited from this temporarily, but the odds are against you.
D) "Burns off the tip of the splinter on the finger (leaving the bulk of the splinter), and declares that it is all better."
This is what is called ablation and is one of the most recommended "cures." The surgeon goes in and burns off the part of the endo that he can see. It can sometimes offer relief for a very short period of time until the endo flames up again. Once you have this procedure, it makes it harder for a qualified doctor to locate and excise (cut out) the endometriosis, because the body heals over the endo.
E) "Actually removes the splinters from the finger & the hand."
This is what happens when you go to a Doctor who specializes in endometriosis excision. The endometriosis is actually cut out of the body. This is called excision. This is the ONLY way to cure endometriosis.
Thank you for reading this, and the next time someone you know mentions "killer cramps", or cyclical pain, consider getting out of your comfort zone and try and help them. BTW, there are actually a few documented cases of endo in males as well, but that is extremely rare."
By Phyllis Orlowski-Johnson
September 18, 2015
Posted in Nancy’s Nook Endometriosis Education and Discussion Group
Please remember all this and make sure (if at all possible) that if you are going to have surgery, it should only be done with someone who is a true specialist in endometriosis, and that they will be excising the endo rather than burning it. Burning is known as ablation, diathermy, cauterisation and coagulation.