Just thought I'd update, I had my follow up at Guys on Tuesday and got my MRI results... Apparently they couldn't see any Endo on my bowel and everything looked normal except for my right Uterosacral Ligament was thickened which suggested Endo had made it's way there..... Odd that my Ultrasound suggested that my ovaries were 'fixed' but nothing on MRI. The Senior Registar (who I saw) said that it doesn't mean that there isn't any endo anywhere else, just that it's possibly mild and not picked up on MRI. So his suggeston was surgery (which I gladly accepted). I'm a little apprehensive as I've heard that recovery from Uterosacral ligament surgery can be painful becuase of all the nerves there... as yet I've not had neurological symptoms so I hope this does't happen. I wonder if anyone knows whether I'd have to have a bowel prep before and have to stay in hopsital after the surgery and can you let me know what your recovery was like? What are the chances of endo returning to that spot?... Also is it true that having endo on this ligament causes bowel symptoms?
Sorry.... so many questions... I've had a lap before but they only removed endo from womb and bowel wall so this is all new to me.
Thanks everyone! xx
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FallenAngel1984
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Hi, that's good that they are investigating everything properly, and you will now have a laparoscopy to find out exactly what is going on and be treated.
In what way do you mean / why are you concerned about Neurological symptoms?
Having endo in pouch of douglas can cause bowel issues, but so can adenomyosis and several other conditions too.
You may have to do a bowel prep depending on your case and preference of your surgeon, some do enemas instead.
How long you will be kept in usually depends on how much was done during surgery, and how well your recovery from anaesthetic etc goes.
I would find out how they surgically plan to treat it too, which is extremely important - whether they will be excising the endo or burning (ablation, diathermy). If all the endo is recognised and thoroughly excised (cut out) on the us ligaments (and elsewhere) for most women it should not recur.
Thank you both for responding... I do have gas pains, pain on opening my bowels and pain during deep penetration. I also have constipation and nausea. What I don't have is back or leg pain... All they have written on the surgery referral is remove endo... So I don't know how they plan to remove it... I'm waiting for my pre-op assessment and I also have an appointment with the specialist nurse. I will ask these questions then. Fingers crossed it doesn't come back, fed up with all of this now!
They have only done a vaginal examination and couldn't feel anything... I fully intend to quiz them about how they will remove it... I would like to think they will cut it out. I'm at Guy's Hospital in London and believe that they are one of the best centres in London (maybe even the country)... Fingers crossed this all gets fixed before Christmas... I don't want another year ruined from being ill!
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Some good info on ligaments supporting uterus - helps understanding of pain
endo and failing immune system 
Endo diet and bowel symptoms
