Prostap Question

Hello ladies,

I had my first prostap injection 2 weeks ago, did anyone else suffer with an upset tummy a lot? I suffer with bloating from the endo but it's been pretty bad the past week along with horrible pains in my stomach and it's really getting me down. I was wondering if anyone else had this and found anything that helped? I've tried peppermint tea/cutting out foods xxx

16 Replies

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  • Hey Kirstie, I am due my second prostrap injection on the 3rd!! I have also had very bad pains more so in the evenings, bloating and my tummy rumbles a lot since I got the jab I don't no if it has any thing 2 do with it r not!! I have been told that things should get better I also take HRT with mine!! I hope you r feeling better soon!

    xx

  • Hi.I had my first 3 month injection 2 weeks ago and have had terrible hip pain and bloating plus very sore lips inside and mouth. The bloating has subsided a little today so hoping things get better as I'm going on holiday in just over 2 weeks time 😯..

  • It seems quite common and I was told to give it 3 weeks but it's hard to sit and wait when it at first gives you so much trouble lol. Should all be worth it for all of us soon :) xx

  • Hi - the way prostap works actually increases oestrogen at first in what is called the flare effect before levels reduce so I think you will have been feeling the effects of that as it can take 3 weeks or so to settle down. Hip pain and increased IBS type symptoms that have been aggravated by this initial oestrogen surge suggest endo around your bowel and you should bear in mind that these drugs don't always help with endo there. If you find that they don't take your pain away you may be told by the consultant that this means it isn't endo causing your pain but this is unlikely to be true and may just mean that the drug is ineffective for the type of endo you have. Do you know where your endo is and how severe and what has been done surgically?

  • That makes sense as it has been pretty bad and constant. I was told I had endometriosis near the bowel/in the ouch of Douglas and it wasn't touched as they said it wS too risky?!

    I had some burned away in April, from behind the ovaries, womb and uterus. The surgeon couldn't comment on anywhere else as he said if it was deeper he wouldn't of seen it...

  • Hi Kirstie

    This is so upsetting to keep hearing what women are being told by general gynaecologists. If you are found to have rectovaginal endo which you have you should be referred straight to a specialist centre and not told they can't touch it. If you are in England this is actually laid down in an NHS contract so failure to refer you on would effectively be a breach of contract. The whole of the UK is still covered by what are called the ESHRE guidelines that say the same. Can you click on my name and look at my post on POD endo and the one on finding a specialist. Look at all the links. Since expertise varies in all walks of life in a particular profession the centres themselves can vary in their ability to deal with severe disease. Where in the UK are you? x

  • Hi

    I went to see the gyni today as I had an MRI and was told that I have endemetrosis in my uterus - she said I can't have hysterectomy until I try this injection called decapeptyl which I had my first today the gyni didn't explai. Much about it to me so I have come home

    Read up on all the reviews of people's comments and now wish I hadn't had it - hair loss mood swings - sleepless nights - etc - I am meant to be having another one in 4 weeks don't think I will - please let me know when this will start working and when it will wear off and I am back to normal - thank for advice

    Laura

  • Hi - it is not possible to have endo in your uterus so I assume that the MRI has picked up suspected adenomyosis, a condition where endometrial tissue is found in the muscular layer of the uterus. There is no guarantee that the injection will work as it will depend on how deep the adenomyosis is and any relief is likely to be temporarily as symptoms usually recur after you stop them. You may actually get an increase in symptoms for the first two or three weeks as these medications increase oestrogen levels in what is called the flare effect before reducing them. Ultimately a hysterectomy is the only cure for this condition. You might find this link helpful:

    adenomyosisadviceassociatio...

  • Sorry to jump in, I was told I have endo in my uterus, so is that not possible? It wasn't a very good gynaecologist

  • As is often the case with endometriosis, what can at first appear a simple question can be complex. Although great strides are being made as to its pathogenesis, much is still not fully understood and the same goes for adenomyosis, a condition similar to endometriosis that was originally referred to as ‘endometriosis interna’, meaning endometriosis within the uterus. However, in 1925 it was renamed when it was found to be different. Both are variously defined as ectopic endometrial or endometrial-like tissue – that is, tissue like or similar to the endometrial lining, that exists in abnormal locations.

    Our understanding at any given time is based on published research findings that stand as evidence until proven otherwise or unsupported theories and personal opinions bound by accepted definitions that in themselves could be subject to challenge as science advances. As things currently stand adenomyosis and endo are considered different diseases. They share similarities and differences. However, the different forms of endo share similarities and differences too both with each other and with adenomyosis. In fact 'nodular' endometriosis has such similarities with adenomyosis as to be defined as adenomyosis externa.

    Endometriosis is now established as underpinned by immune and endocrine abnormalities some of which involve autoimmune characteristics. Some of these have been associated with adenomyosis too. Research is currently focused on understanding the factors that underlie these oestrogen dependent diseases and it may be that they are found to share the same underlying processes as to be part of one overall immune/endocrine disease that allows for different manifestations such as endo and adeno which I believe to be the case with one overriding purpose - to prevent fertility by any and all opportunities available.

    But for now adeno is not defined as associated with endometriosis and so it has to be accepted that it is not possible to have endo in the uterus.

  • Great info. Thank you for that. It seems we learn more about the condition on here than through the professionals x

  • Thank you for you information - will the injection

    I have help as the gyni didn't explain anything - I do get serve pelvic pain - I long for a normal active life but most days are a struggle for me .

  • Unfortunately there is no way of predicting if the injection will help - it will be a case of wait and see.

  • Is ademonoysis atill as painful the gyni is saying I may need a full hysterectomy - the pains I get a breath taking like I am in labour - I am having a colonoscopy next Monday as they want to check my bowel as they found abnormalities in my stool can this all be connected - my gyni I saw a week ago wasn't great just couldn't wait to finish me for her next appointment .

    Thank you

  • To be honest at the moment it isn't very clear what is suspected. Blood in the stools is actually quite common and especially with endo affecting the bowel as it causes inflammation. You might have endo affecting the bowel which would be behind the uterus and perhaps this is what she meant. I think it would be a good idea to get a copy of the report that is sent to your GP to see what exactly has been reported.

  • Thank you for your reply so quickly - I will get the report from my GP you seem to know so much about this - thank you - much appreciated

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