Still in so much pain: I found out that I... - Endometriosis UK

Endometriosis UK
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Still in so much pain


I found out that I had endometriosis early this year and I tried the mirena coil and the pill to no avail which led me to have the laparoscopic surgery to remove it but it has now been two months and there is still no change in the pain. I have been given cocodamol and codeine for the pain but it still affects me a lot. Is anyone else going through this or has been? I don't know what to do now if it still doesn't stop hurting.

8 Replies

2 x laparoscopy and excision. Mirena and still no different! Saw Dr today whose answer is stronger meds and 'I doubt they got it all'. Fed up well and truly. Over a decade in total. Worse the past 4. Crap isn't it!!

Hi hun,

I'm in exactly the same position as you - had a lap middle of iune this year in hospital (due to the NHS being irritatingly slow at getting the ball rolling) and i haven't noticed a great deal of difference either pain wise . When i met with my consultant last week to discuss the results he said that it could take anywhere between 3 and 4 months to get back to some sort of normality and that when you've been in chronic pain for so long it takes a while for your body to realise that the source of the pain and inflammation is no longer there and also if he's burned or excised any cysts patches of endo or removed adhesions that can also aggrivate the nerves. If you don't mind me asking what did they discover during the laparoscopy? Have you gone to a general gyne or were you refered to a specialist endo centre for the procedure? If I'm still experiencing pain 6 weeks time i'll be going back to see my surgeon xx

Hi, it helps to know I am not the only one. I had seen a specialist in endometriosis and he found it in two places, on the womb and inside. He cut it out and said the only thing we can do is wait and see. The problem is that the pains not going away and I'm scared that there's nothing else left to do apart from the pill again which I already know makes no difference for me. Good luck xx

i completley undetstand how frustrating ths must be for you. Definitely go back to the specialist if the pain continues as there should be an improvement. Have you tried the contraceptive injection? Unfortunately there is no size fits all treatment for endo it's all trial and error to see what works best. PM me if you ever need to talk. Best of luck to you too xx

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Jaskirat in reply to Hidden

Hi, I'm suffering from period pains through out the month. So I won't be on my period and I will still be in excruciating pain. There's the cramps, nausea, headaches, and a constant pain in my abdominal area.

In addition to what the other ladies have said, you could probably add a different painkiller to the mix. If you are only taking codeine or co-codamol you are not taking an NSAID type of painkiller. Unless you have a reason you can't take NSAIDs then ask your GP if you can try Naproxen. You can take it along with either codeine or co-codamol. If you have chronic daily pain then you can take it daily, or else start it 2-3 days before your period and/or ovulation (whichever is painful for you).

Jaskirat in reply to Mabes

Thsnkyiu! I will definitely look into that Xx

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