Firstly, this is the 1st time i have ever felt the need to join one of these forums as i was so touched by how many of you suffer from the same/similar symptoms. In Australia this umbilical endemetriosis condition is almost unheard of.
My story began in December 2011 when i thought me wearing tight jeans was the cause of my belly button pain and strange discomfort every period. I put up with it for three years and the pain got progressively worse. Meanwhile i had numerous ultrasounds and no doctor could help me. I was so frustrated because i had this terrible pain coming from my bellybutton and nobody could treat it or tell me what it was. I was so over ultrasounds and specialists. I finally found a surgeon who was keen to get in and have a look. By this stage i had a tiny nodule growing inside my bellybutton . I had surgery where it was confirmed i have umbilical endemetriosis. My surgeon said he removed it internally. This had stopped the pain i was feeling internally but ever since the surgery the nodule was growing in size and started to bleed every period, i now have a second one growing also. They both bleed every period. I used to have such a nice bellybutton now it is hideous.
In conclusion i booked with one of the best gynos in Sydney. He said there is nothing i can do about this unless i choose to have them removed which means a full reconstruction of my belly button and I'm a little aprehensive to do this as im worried to see what having no bellybutton will look like or i persevere and if i fall pregnant my condition will most likely improve.
Any thoughts on the steps i should take?