How many laps have you had?: Hi everyone, I... - Endometriosis UK

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How many laps have you had?

Jayme profile image
5 Replies

Hi everyone,

I'm just wanting some answers on how many laparoscopies you guys have had?

I had my first one in june last year which confirmed endo and went back to see the specialist again in march. I told her I still have a lot of pain that is getting worse but her response was that they would have removed all the endo and theres no way it would have grown back in a year. However imstruggling to believe this as I am in a lot of pain which seems to be getting worse with each cycle. I was just wondering how many laparoscopies others have had and how close together they were?

I feel stuck like no one is taking the pain seriously and feels like they think i'm just making it up.

Thanks in advance :)

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Jayme profile image
Jayme
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Yazza profile image
Yazza

When I had my diagnostic lap under a general gyni he said there were 2 minimal spots of endo on my ureter (which he didn't treat as he didn't want to cause any further damage)!

When I went back to him with pain still ongoing and getting worse he very arrogantly turned round and said I would have treated it.....

My response to this was actually you told me you didn't treat it as you were concerned about causing further damage! He then looked back through his notes didn't even apologise and carried on talking.... At that point I lost all faith in him and went back to my gp for a referal to an endometriosis treatment centre

OMG what a difference!

So I would say take advice from lindle as she has amazing knowledge after her very long battle. Xx

Good luck

Yazza. X

Catness profile image
Catness

Hello :) I have just had my fourth lap which was more of a diagnostic lap to see how bad it has gotten ready for another much bigger lap in a few months. I was told by my first consultant (now on to consultant number 3) that patients can expect to feel symptom free on average for about ten months after a lap (I am unsure if she was talking about ablation or excision surgery). I have had both ablation and excision and it has come back and spread at an alarming rate and I had experienced endo consultants and surgeons performing these operations.

It sounds like your Dr doesn't know what they are talking about and I would ask to get referred to a specialist endo centre as previously mentioned.

I hope you get some relief and help :) xx

Sunshine_1976 profile image
Sunshine_1976

I have stage 4 aggressive endo

I had a lap in jan - problems all started again and went for scan in March - cyst at 6.5cm is back - I would suggest to ask for a scan.

Good luck x

Jayme profile image
Jayme

It is very very severe pain on my period, where I often end up in ED on morphine because general pain killers such as codeine etc don't control the pain. Mid-cycle is also very sore but can manage it by staying in bed and taking pain relief. It was done through a public hospital and I don't think the surgeon was an endo specialist.

Klarex profile image
Klarex

I've had 6 laproscopys in 6 yrs. having a hysteroscopy 7/715.

On my last lap, the gynea Dr told me he was certain there would be no endo, as I had zolodex injection prior, hey presto when I came round I had plenty of endo and adhesions, all visible endo was removed. So there could still be some there.

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