The day I was dreading finally came

I've always had heavy painful periods, and I "knew" I had endometriosiss, my mum has it, my auntie has it, my cousin has it. And my mum even believes that her mum may have had it but in those days it wasn't really heard off.

For the past 3 months I was experiencing a very sharp pain in my lower left abdomen, the first time I saw a doctor they put it down to period pains, and I was put on the pill (Lucette). The second time I went in to A&E and had the usual blood tests, pregnancy test, and an xray of my tummy, the doctor told me I just had a large amount of poo inside me, the very next day I saw my GP who told me it feels like I have a lump on my left hand side. While waiting for a scan appointment the pain "spread" the whole of my abdomen hurt and my back.

The scan showed 4 large cysts on my left ovary, I was devastated and scared, I was told I would need it removed and I was waiting for the surgery appointment but 2 days after the scan I was in extreme pain and an ambulance was called by my mum. I was admitted to hospital straight away and had the surgery the same day.

I had a laparoscopy and cystoscopy, I am great full that it was done through keyhole, and they saved my left ovary. The largest cyst was 15cm the second and and third were about the size of oranges, and the smaller one is about 2.7cm and they left that one inside, because it was very stuck to my ovary. And it was confirmed that I do have endo.

I cried when they told me one was still inside, I am scared it will grow as big as the others, and I don't want to go through another operation. I am petrified what the future may bring, I am 27, and single, and I fear that by the time I am ready to try for a baby, it will be too late.

This is my first time on a forum, and writing all of that feels like a small weight off my shoulders.


2 Replies

  • Caroline, just wanted to send you a big hug and say that I'm sorry to hear you've been through so much. Take care recuperating and try not to get too annoyed or worried at yourself. I know that I can get quite annoyed and angry that my stupid body is so painful and seems hellbent on hurting itself with endo. It is just one of those sad but annoying things that we must keep trying to accept and get on with in the best way we can. I so hope you start to feel better post-op soon. Keep a close eye on your symptoms and over time when you are strong enough again you can deal with the other cyst. I have one that they haven't removed and know how you feel.

    As for worrying about the longer term worries about fertility and children, this is going to sound very frustrating .... Sorry, but pop that on the back burner until the time comes. When you find the right person, you can both tackle the baby thing together. We're trying and as much as I worry or relax, I can't change my situation... one day at a time.

    Sending you all the very best for your future.

  • Thank you for your reply, it means a lot. Everything you have said is spot on and I know that but sometimes I feel like I need reminding. And being off sick from work is starting to get me down, it's so depressing staying at home for such a long period of time.

    I wish you well x

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