Uncertain endometriosis : Hi, A few years... - Endometriosis UK

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Uncertain endometriosis

Emily87 profile image
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Hi,

A few years ago I was diagnosed with IBS-D, and have managed to keep it under control with my diet. With that came anxiety issues, and stress problems.

Over a year ago I started to get what I can only describe as severe cramp in my back passage, and the pain got incrediblely worse during my period, to the point where it was difficult to go to the toilet because it's to painful to push. After visiting my doctor I was told it sounds like endometriosis, I was sent for different tests and told to loop my pill. Since looping my pill I have had break through bleeding, some which develop in to a full period even though I'm taking the pill (this lasted for 10 days), I also have period pain after bouts of diarrhoea and if I'm desperate for a wee.

I have had a smear, an internal and external ultra sound, blood tests, x-Ray and yesterday I had a sigmoidoscopy, all of these have come back normal (though I am waiting on biopsy results from yesterday) I am seeing my gyno on Thursday who wants me to have a laparoscopy, as she says that's the only way to find out for certain.

My main worry is that the laparoscopy won't show anything either. I feel like people think it's all in my head, and I'm causing the pain myself without knowing it. If it does come back clear I'm not really sure where to go from there!

Has anyone else been in this situation? Has anybody gone through all this tests just to find out it's not endometriosis?

Thanks for your help,

Emily

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