As some of you know i saw a regular gyn late last year/early this year. Was to have lap for removal of endometriomas, hysteroscopy and mirena insertion. I have other health issues but gynae agreed. Next thing goal posts were moved & was told its too risky - my own medical team think im well enough. She wanted to treat with mirena & if not helpful would reconsider lap. Fast fwd i have had loads of problems with coil & have been utterly miserable. In between times ive done my homework on all my options. Saw gyn again who wanted me to persevere. Offered anaesthetic assessment for lap if i insisted i wanted it, but treatment would be with hellica where as I wanted excision. Formed view her experience of endo as a regular gyn wasnt great so decided on a 2nd opinion as she kept moving goalposts & giving conflicting info/advice. I asked her to refer for 2nd opinion to a colleague who is an endo specialist & bsge listed. Waited ages, told he wanted more info so presumed my referral was rubbish. Gp also requested early appt for me. Neither of us were making any progress & 8/52 later still not on waiting list for an appt, as no one would listen never mind help I made a complaint. Ive now learned from my gp he has said he has a full list, wont see me and I should be referred locally. Im upset & angry as i work in same nhs trust & know he does not have a full list. I think its due to it being 2nd opinion, complaint and anaesthetic risks. Gp writing back to say no i want seen but she has never encountered this before.
Sorry for long post but i needed to share. What happened to patients rights. So now 9 months after initial referral im in bother at work due to regular absences, in significant pain & bleeding daily with a host of other endo symptoms but its ok apparently!
Any thoughts or advice ?