Sorry for the length of post in advance :).
My symptoms started off with what doctors thought was a uti 5 yrs ago. After numerous anti-biotics over the space of a year the constant discomfort in my pelvis area didn't go away. I was then sent for a cystoscopy which thankfully came back clear.
I then however started getting other strange symptoms - periods slightly more painful (although I am never in excruciating pain thankfully), some blood clots with every period and odd pink/brown spotting at the start and end of periods. The discomfort in my pelvis was constant not cyclic. I had smear tests (normal), ultrasound scan of whole abdomen (normal) and a CA125 blood test (also normal).
I had an appointment with an endo specialist who advised that as my pain was not excruciating that I should try and get pregnant or try the mini pill.
I decided against the mini pill as did want to try and get pregnant.... I therefore coped with the discomfort but then started getting lower back ache - again this was not excruciating but a constant discomfort.
Luckily within a few months of trying I got pregnant and the whole pregnancy was great - totally symptom free.... lovely!!!
Three months post pregnancy the pelvic pain and back ache came back. I tried the mini pill for a 4 month period which helped initially but I then started spotting continuously and getting cramps. I have now been put on a combined pill which has eased all discomfort and made my periods manageable (I am try-cycling). Not many clots or any brown spotting anymore yay!
However I do now have some other symptoms - constipation, slight discomfort on emptying bowels and the pain that is bothering me the most.... heavy burning sternum pain which radiates to my back and sometimes ribs. Ended up in A&E as chest pain was so bad I thought I was having a problem with my heart. Had an ECG which was fine and was told that it was acid reflux. I also get what feels like flutters in my chest and slight breathlessness on occasion - scary!
Does anyone get upper body pain too? I don't know if this is an endo symptom or if it is indeed really bad acid reflux. The chest pain is not cyclic, I never seem to get it when I have my period but would it not ease with the pill if it was endo related? Just worried that I may have endo on my diaphragm or lungs or elsewhere. I am on PPI's which at the moment aren't helping and it is so painful..... just not convinced it's acid related.
I also have an appointment with an endo specialist again on the 9th of April but feel if it wasn't for the upper body pain I wouldn't be going as I have the pelvic/back discomfort under control and I am super scared at the idea of a lap!!!