Good afternoon. This may be a long post but I am hoping if I put everything out there someone may be able to tell me if anything I have sounds like Endo. I am being pushed from pillar to post by the hospital and am getting desperate. Here goes the life story!
October 2012 saw me have some serious abdo pain. Suspected burst ovarian cysts. Ultrasound showed fluid in pelvis. Referred to gynae with ongoing left side abdo pain which was getting progressively worse. Gynae suspected endo so did a laproscopy. Found and removed adhesions which had pulled my bowel out of alignment. Sent home with no follow up and no pain. Was fitted with Mirena during the lap but I had it removed as I was spotting everyday and it was not something I could live with. Went back onto Dianette.
November 2014 saw me have 2 major episodes of abdominal pain requiring attendance at A&E. Pain has been left sided every day since then. GP referred me to colo-rectal and urology as they seemed the most likely causes of stomach pains. CT scan showed urologist I have a cyst in right kidney and a small stone in left which should not be causing pain. Colo-rectal sent me for a Barium Enema (most unpleasant and painful) which has been done but I am waiting for the results of this. Colo-rectal made me feel really small, almost like he thought I was making things up; I am taking my husband with me next time as back-up.
Last week I had two horrific episodes of abdo pain which sent me to A&E, really intense pain for hours with sweats and a fever. One Dr I saw went through my symptoms and said it sounds like endo so I should be referred to gynae. This was also related to the fact that a Buscopan jab didn't really lift the pain by much which she thought was symptomatic of endo. She was especially surprised that I had adhesions with no endo. My GP had a sulk but has done this for me, I have an appointment at the end of April.
My pain is left side always level with and just above my navel. It is worse when I have my pill free week. The pain is always a nagging feeling but I get sharper stabbing pains which come with no warning and last minutes or hours. The regular daily pain as gotten worse with each episode and is quite wearing. I am currently taking Tramadol 100mg up to 3 times per day, Buscopan 2x daily with the option of adding paracetomol if I need to. I know I may have adhesions again or it may be a bowel issue but the A&E consultant seemed really to latch on to endo - in all honesty she has been the only person to listen and ask questions based on what I was telling her so I feel she would have the best ideas.
I have lost over a stone in less than a year with 5 pounds coming off in the last week. Because of pain I have little or no appetite. I cook food but then can't eat much more than a few mouthfuls.
I'm in my late 30s. Have a daughter at uni - result of my only pregnancy.
To all of you ladies out there does any of this sound familiar?