I have just joined today, I had a Total Hysterectomy in 2008, I had severe endometriosis stage 4. Having gone through years of pain since I was a teenager with my periods and years of fertility problems and treatment including ivf. I have been so much better since the hysterectomy but starting getting pains in my lower back, right side of pelvis and right hip. These pains have become very debilitating and on Tuesday I was so ill I had to stay In bed for most of the day. I went to my doctors on Thursday and am being referred to the hospital gynae for investigations. I know that there is no cure for this terrible chronic illness but I cant stop worrying if the endo has come back!!!. I would be lovely if there is someone who has gone through a similar situation who I can talk to as at the moment my emotions are everywhere. Thanks for taking the time to read my post.