About Endemetriosis/Problems with it. - Endometriosis UK

Endometriosis UK

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About Endemetriosis/Problems with it.

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I had a pretty bad case of Endemetriosis before. I'm not going to tell everything, but I will share some. It's horrible to go through. I was put on a lot of medicines, because of all my problems. The Lupron Depot shots was only one of them. I had a Hysterectomy. I had a biopsy done that came back negative. Well all my tests were negative. But I had Endemetriosis for two and a half years. Before it was properly taken care of. I had no choice but to have a total hysterectomy. I was warned about it coming back... And it being worse than the first time. If I hadn't had the hysterectomy. I was also told... That the chances of it coming back afterwards were slim, but rare occasions it can happen. I may have it now. After going through all of this before. My advice to anyone who suspects a problem with Endemetriosis. Take it seriously. It's a very difficult and serious mater. That can lead to more serious problems, too. It's often misdiagnosed. Which makes it hard for Women who suffer with it. Be sure to have a good Dr., because that really matters. I also know how it's difficult because of the emotional part. Of it you go through with it, too. As much as all the physical things it causes. Keep your chins up. There's a brighter side. After the pain and suffering. No matter how bad it hurts... It's ok to cry, too. Everyone has a hard time handling it. I know it makes mood swings bad, too. And it's as much emotional as physical. I wish I could've found a support site before. When I went through this. I didn't though, but I did have people help me get through it.

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Lou-23 profile image
Lou-23

I'm really happy that iv found a site where other people are going through the same thing I'm always in and out of moods crying for nothing feel alone all the time yet I'm married with three beautiful boys I am very lucky to be honest but then then pain and everything came out of no where and I just can't seem to explain how I feel to any body I just wanna run and hide all the time the pains awful and I feel tired all the time. I didn't realise that it could keep coming back though x

in reply toLou-23

That does usually happen. I cried a whole bunch before. And have been now. At least there's a place for support now. That's an awesome thing. Because I know how important it is... To also have someone else to talk with. That's going through the same thing. And to be able to share with others about it. Sometimes it's so frustrating. Just leaning on your loved ones, that are supportive. Because even though they understand. You need someone else to talk to about it. Because it's just as difficult for them. Even though they aren't dealing with it they are, too.

jvg69 profile image
jvg69

Thanks for posting, a very touching message. You sound like you have had a tough time & I really wish you well for the future xx

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