Endometriosis UK

What pain relief is everyone on?

Hey ladies what pain relief are u all taking, at the mo am on gabapentin 300mg x 3 times a day. Plus flare up days 1000mg paracetamol x 4 day , 50mg diclofenac x3 a day and oral moph evey 4-6 hrs, and it's jusy making me woozy but still in pain so wondering if any1 one else on different that maybe I can suggest to Drs? Xx

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Hi, sorry to hear you're suffering so much. I was on very similar medication but in the end it did nothing. The only relief I ever got was using prostap or zoladex to switch everything off so I didn't have a period. It was heaven but obviously you end up with menopausal symptoms and it's not a long term option. But it was a relief not to be in pain and i was told during this time the endometriosis does recede a little. In the end I had laparoscopic surgery to shave all my endometriosis but not all consultants can do this. I'm pain free now. Hope things get better for you too x

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Ive had 5 ops and soles ex 3 times its give relief to

Point x

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Oh dear. Unfortunately it seems to be hit and miss with this condition. Everything varies so much with each case. Maybe you need to see a different consultant who can give other ideas? The meds did nothing for me in the end and apparently some procedures do result in more symptoms than others. I hope you find some relief soon x

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At the moment I'm under a pain specialist, physio and waiting on gastro and any gynea app from another hospital so hoping things will change, if exercise it makes it worse I just wish I didn't have it I wouldn't wish this on my worst ememy :( x

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Awe I really feel for you. I have been where you are now and I've come out the other side. I really hope things get sorted for you soon. Don't give up hope and stay strong. I know it's unbearably difficult. Sending you hugs. X

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Thanks hun it's hard I struggle every month but I just keep fighting and to make it worse I hit 30 this year and I'm starting to want to want children but I'm single at the moment so I don't want them just yet x

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Holy moly that's a cocktail!! I hope you are not being put at risk with such strong painkillers. It may be worth checking out opiate induced pain, sometimes long term use of opiate based pain killers can actually cause pain, not to mention physical addiction.

I usually just stick to diclofenac/naproxen and on really bad days everything with codiene, otherwise I try not to take pain relief. I see a homeopath periodically and use natural remedies where I can, adjusted my diet, reduced my alcohol intake and get a lot of exercise. I do benefit from a wicked pain tolerance level but I was actually in more pain before I made all my lifestyle changes. The coil has also made a big change in my quality of life. The only time I was on really strong drugs is during hospital admissions at which point I have been on morphine and oxycontin (and I felt dreadful! I was still in pain but did not give a rats ass about it!!). After my recent surgery my pain has been much easier to manage.

Of course everyone is different so its all about trial and error and finding what helps you. If I were in your shoes I would be terrified of all of those drugs, if you are still in pain something isn't right there and this treatment must not suit you, your Doc needs to work with you to find the combination that works.

I hope you find the answers hun, it's no fun being in pain all the time xxx

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I am om 3x pregabblin x2 OxyContin plus quick release oxynorm when I'm flat on the floor screaming in agony.......

Plus omeprazole &cyclizine, it's a cocktail that works 9 times out of 10

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Hi,

I take gabapentin, noratriptyline and sertraline regulary for pain, then cooadamol on top. Good luck..

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