Where to go?: Just looking for some advice... - Endometriosis UK

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Where to go?

char172 profile image
6 Replies

Just looking for some advice.. Currently waiting for my second lap surgery and have started to get worse, e.g always nauseous, and painful symptoms leading to suggest the endo has spread to my bowels and intestinal area. I'm 99% sure this is the case but who do I go to? The doctors most probably will only refer me on to the hospital. Do I wait and mention it during my pre-op for my endo on reproductive system?? Any advice would be amazing!

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char172
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6 Replies
pale_eil profile image
pale_eil

Im in similar situation. I am due my first lap in next few weeks but in the 12 weeks I have already waited, my symptoms have multiplied. I feel like a cripple they are so bad. I'm going to just say when I get there can they please look in all the places I have symptoms, but as its my first diagnostic one I assume they will have a good look anyway. Maybe your gp could write a letter to your consultant? Xx

char172 profile image
char172 in reply to pale_eil

Aw good luck to you and your surgery! And yeah I'll probably end up going to the doctors, could be a while yet before my next surgery :o

sujs1972 profile image
sujs1972

I would go to your GP and ask him to write to the consultant if they agree with your assessment. If there is bowel involvement, a colorectal surgeon needs to be present in case of injury to to bowel, and you will need a bowel prep before surgery. Depending on your surgeon it might change the treatment plan and put back the lap. I know they like to do as much as they can in one surgery as subsequent surgeries can be more difficult due to adhesions. Your consultant needs to know before the pre op - at that point it would be too late to change anything, and you may end up having two surgery.

Blondedia profile image
Blondedia

I wouldn't worry, once they put the cameras in, they'll be able to see exactly what's going on inside.

I would say that if you are feeling worse in certain parts of the body, it could very well be that the endo has fused certain body parts together and this could be causing you more pain. The pain in my ovaries is a lot worse than the first lap, my ovaries have now stuck behind my womb.

Try not to worry they'll sort it. Xx

Blondedia profile image
Blondedia

I wouldn't worry, once they put the cameras in, they'll be able to see exactly what's going on inside.

I would say that if you are feeling worse in certain parts of the body, it could very well be that the endo has fused certain body parts together and this could be causing you more pain. The pain in my ovaries is a lot worse than the first lap, my ovaries have now stuck behind my womb.

Try not to worry they'll sort it. Xx

CharlieSays profile image
CharlieSays

I would mention it well before the pre-op - start with your GP if you're not due to see your consultant anytime soon. I had my 1st lap in February and as my pelvic organs were so stuck together, the surgeon couldnt actually see well enough to remove any endo. I've since asked for a referral to an endo specialist and he sent me for an MRI on Christmas Eve, to get a better picture of what would be involved in further surgery. There is a strong chance that my bowel is involved, but the MRI should enable him to see this before going ahead with further surgery. So you may find an MRI would help you too.

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