I am new on here I find alot of posts helpful but i just think i am too young for my treatment and will it affect me down along the line in life. I have suffered with my periods from a very early age of 10 i was missing alot of school unable to move, vomiting, pain and nausea. i was back and forth to my doctor constantly and finally when i was 16 i found an answer to why ENDOMETORIOSIS!!! It took for me to be able to not walk on my left leg, vomiting and continuous A&E visits for them to really take me serious and have a look inside so i had my first operation where i was diagnosed with endometriosis. I was told i would get years of relief just like my mum ( She didn't have endometrosis till after she had me and had 10 years relief from her operation).
I got 2 years relief and was back to where i started when i was 18 i was in my final year of school and missed half the year therefore my exam results suffered and i didn't get the points i needed ( Luckily there was a different course i could do before going into a university which would take 2 years) I was offered Decapeptyl 3 month injection for 9 months i said no due to the fact the pill does not suit me or anyone in my family and the thought of having it in my system for 3 months and not being able to stop it made me worry as i get depressed on the pill as it is. I had my second operation after my exams i waited 6 months to be operated on and their answer was to insert the coil while i was being operated on. when i came around after the operation i was told the cysts i had had burst themself but they did laser off the endo stretched me and put in the coil. i was extremely sore after and the coil last all of 5 days after i came out of hospital as it was so sore i had to go to A&E twice before they would remove it. I was also told then i would get years of relief. I went on to do my 2 years of college and start another course in the September I began getting bad pains in the October by the November i was vomiting everything i ate back up after a while. I went to my doctor i said i knew it was the endo again he didn't think so he tried all different meds then went on to go to stomach specialist in hospital he did all tests including a endoscopy and colonoscopy which was only few months ago ( August) showed endo on the bowel.
I was on a waiting list for gynaecologist for nearly a year finally got an appointment for June i was told it was my bowels and i needed to sort it out i told her i knew it was the endometrosis she sent me away with aload of laxatives which did not work and prescribed Decapeptyl as a fix if the bowels were not the problem and an appointment for December 6 months away then. I tried the laxitives in hope i wouldnt have to try injection as it worried me. i went to four different doctors and each one said the injection was my only hope of having kids in life and helping myself manage the pain. i was very hesitant to start it but was told the gyne would not treat me unless i tried it and even said i could get it month by month so i had no choice. i am now 24 and i started the injection in September of this year and had my 4th one Tuesday. my experience has not been the best the livial did not suit me it just made me fee so much sicker so i stopped taking it. the first 2 months was just hot flushes, cramps, headaches and sleepless nights I also had a period and really bad cramps. The third month no appetite, still bad cramps, feeling sick and 2 weeks into 3rd one i began getting pains in my legs and arms and feeling really down crying and feeling bad about myself on top of all the above symptoms. after i got fourth one Tuesday i experienced a mini break down as i just could not handle taking it any longer and just broke down crying i also experienced bad pain the next day in my left side on my ribs as if i had been beaten i was given difiene spray to use and am seeing my gyne this friday but now i can prove nothing wrong and was the endometrosis all along but i don't like the way i am feeling on the injection and still vomiting all this time later. Sorry about the length of this post i just needed to get it out there rather than thinking about it alot myself i don't know anyone who suffers from it like this. Has anyone experienced anything similar or taken this injection that has any advise??
Thanks in advance