Firstly I'm new to the group so wanted to say how helpful I have found it reading your posts. I have suspected endo and am waiting on my first lap (sometime before xmas I have been told). My mother has severe endo so there is a family trace there.
I have chronic pain most of the time now, it started as really painful periods about 18 months ago, but now its pretty must constant. My gyno advised to try going back on the pill to see if it helped but this made me so much worse. My left ovary/side was so painful, i am in bits and this goes into my hip, I have numb legs and sometimes now need to use a walking stick to get about (I'm only 32!) Perhaps this is adhesions in my left pelvis causing issues with my nerves?
I stopped taking the pill a few weeks go and it seemed to have eased off a bit, its almost like the hormones were feeding the pain. Also, my period hasn't come back since coming off it, and my periods have never been heavy, although I feel like I am giving birth when I have them, with horrific contractions, only to find just a bit of light spotting when I check. Very confusing!
I've now also developed a lump in my breast, my gp thinks the hormones/problems have effected my breast tissue in some way. I'm having a scan for that next week.
Anyway I just wanted to share my experience really so see if anyone had any similar experience or knowledge to share.
thanks so much