So I got diagnosed with Endo in 2014 after years of painful periods, bad IBS (mainly constipation with bloating and nausea) and painful sex etc. I also got diagnosed with pelvic floor dysfunction just before, and given where my endo was (pouch of douglas, bladder, uterus ligaments) it is believed that it was all connected.
I was put on the progesterone only mini pill just before my laparoscopy and I haven't had a period since, not even spotting, so this has solved my painful periods and severe pelvic pain, but I have still been suffering with everything else and am still reliant on suppositories to open my bowels despite having physio.
In the last few months to a year though things have got much worse. While I still suffer with opening my bowels the suppositories don't always work anymore and I've been passing softer stools as well as mucus and some blood (sorry to be graphic). I have also been having a horrific flank pain in my left side. I have been back to the doc, bloods were fine, 1 urine sample came back with raised white blood cells but rest were fine, ultrasound showed bowel wall thickening but sigmoidoscopy was fine, 1 biopsy showed inflammatory markers but rest were fine so they said it wasn't conclusive to a kidney problem nor Crohn's or colitis. I then had an MRI which showed I had a lesion on my left adrenal gland.
I am seeing an echonologist this week about the lesion but just wondered if anyone else has had a similar experience to me? My gynae said it was impossible for the endo to return with no periods and on the pill I am on, but I am concerned about these symptoms? X