Hi, I have been suffering from Endo since 2009. I have had many operation, 1) bowel reconstruction due to Endo inside my bowels. 2) keyhole surgery to remove Endo on my overies. 3) partial hystercretomy. 4) cystoscopy due to cystitis and lumps inside my bladder. I also suffer from IBS.
I'm in pain all the time, I'm coming to the point where I'm getting scared to eat anything. I'm on the Endo diet, ibs diet. I feel weak, very, very tired, sometimes dizzy, lack of energy. I have been taking antibiotics since my last operation which was in June this year. I keep getting bladder infection, as soon as I have finished my course of antibiotics 1-2 days later the infection and pains come back even more painful.
Is anyone else suffering from this. Can Endo be causing the cystitis to keep coming back? I can't seem to get a break from these pains. I am also losing interest in food due to pain. I feel so lost I don't know what to do, what to eat that won't cause me pain. This is making me depressed.
I've had blood test done on Monday, I'm awaiting test results. I think i might be lacking in something. I feel like running away from myself, leave my body at home and take my mind on holiday somewhere.
I'm so fed up of taking antibiotics, they do help a lot but once I have finished them I'm back to square one.
I would like to know if anyone has the same problem like me and how they manage it on a daily basis?