Any positive coil stories?

Hi all, really new to this group however from various research I cant seem to find the positives to the coil? also would like to know if any one has gone through the Cut out over the laser method and how it has worked?

Lastly interested in understanding how you ladies cope with UTI's and if anyone has had any bladder treatment that has been positive.

Thank you all for reading x

11 Replies

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  • Hi

    Can't comment on the coil as I have never tried it. Regarding your question about cutting out v lazer. Technically, the question is not about cutting out - 'excision ' v lazer as some surgeons often use lazer cutting techniques to excise diseased tissue. The debate is more about excision v attempting to burn away the diseased tissue by blasting it with heat. The latter method potentially causes more problems in the long term. It is a little like melting off the top of an iceburg with a blow torch while leaving a big mass of trouble under the surface of the water. Most good consultants will pioritize excision these days.

  • thank you so much for replying I am due to see my gyne next week so will discuss with him. I totally see your point re the iceburg its the plaster over cracks :) - lets see if I can get somewhere. Cant take this pain every day im a right miserable cow! xx

  • Hiya. I agree totally with what didymus has already said. I posted some info about a month ago from a different support group that helps explain it all, I'll try to post the link but not sure if i can do it on my phone. If it doesn't work I think it's called surgical techniques and you should be able to find it via my profile / activity or by searching for it. healthunlocked.com/endometr...

  • Hi! I had mine lasered in Feb and have been doing really well since. My biggest implant was on my bladder giving me constant infection like symptoms and blood in my urine. It took a while to settle but things have been good. I've also had the coil fitted since. It was quite painful going in but I've not had any kids or anything so think this can make it a bit worse. It wasn't unbearable though. I had it fitted in April and started making my periods a lot lighter, although they are still painful and last about 2 weeks. However this month I've had quite a heavy and very painful period. Just takes time to settle though I think. Everyone seems totally different xx

  • My coil is a god send, it really has changed my life! When I first had the coil put in (during my first lap) I had three months of terrible discomfort and pain but in truth it was no worse than the pain I had from endo so I stuck it out. One day it was like someone had flicked a switch, I was pain free and had loads of energy. I am now on my second coil, the change with no pain relief or anaesthetic was a little traumatising to be honest don't ever have it done without especially as an endo sufferer! My endo symptoms have returned but they seem dulled down with the coil so its manageable at least.

    I have had laser for the first surgery and the second was cut out, I got more immediate relief from it being cut away than laser and it returned in exactly the same place after laser.

    Good luck xxx

  • Hi I have the mirena coil, I wasn't sure to start with and had it put in during laparoscopy it took ten months to settle down how ever it's been really good for me I don't bleed at all, it's not a quick fix but has worked well for me.

  • Can't comment on the Coil, but I used to have loads of UTIs. As soon as I suspected one, I'd start drinking loads of cranberry juice and cut out caffeine and alcohol, then straight to the docs with a urine sample to get antibiotics. My GP said to keep well hydrated, so now I make sure I drink a lot of water, I almost feel like I'm drinking too much sometimes (I always have a glass on the go at work) but I seem to have been ok for a couple of years now (touch wood!). The doc said barley water is also good for UTIs.

  • Hiya :)

    Right ok so firstly Mirena coil. I had my first coil put in at the end of April as I have endo and adeno. Considering I spotted everyday anyway and had some sort of cramps everyday too, I didn't really notice the mirena settling although I was miserable anyway from my symptoms. I had a lap at the end of June to excise my stage 3-4 endo (had one a year before this where they burned it) and during the lap they did a hysteroscopy and found that my womb had half expelled the coil so they replaced it. This was because I have a misshapen womb called a bicornuate uterus and it is known for someone with this to have trouble getting the coil

    To 'sit'. They had also found my endo had spread massively and was on my bowel and bladder and all over my pelvis/ ovaries etc. had I had excision surgery initially I believe that it wouldn't have been so bad. So I have had my second coil in now for just over one month and already I am feeling better. I am still spotting lightly everyday and get cramps here and there but compared to what it was, it's really improved! I can actually do things now and am

    Not bed ridden for a week at a time. My partner and mum have both positively commented that I seem

    A lot happier and relaxed now as I do feel my mental health has balanced. Because my last lap was extensive and they cut a lot out, it has taken longer to recover, but I do feel a lot better this time than I did last time and if I have to have another lap (looks quite likely) I won't even consider burning as it doesn't work for me.

    I was worried that I would put on weight with the coil but I use my fitness app and follow the endo diet and have actually lost 10 pounds. The only downside for me is that I have adult acne anyway from

    The endo and the coil made it a lot worse. However I am on antibiotics for my skin and even that is clearing up nicely.

    I have interstitial cystitis so I didn't feel anything more than I usually do with the endo on my bladder.

    The endo diet helps my

    Bladder symptoms and flare ups and caffeine and alcohol are avoided at all costs (except the odd drink on Special occasions. if you experience chronic UTIs then cranberry juice should be avoided as this can actually irritate your bladder a lot more. I find pain killers, water,

    Hot water bottles and cystitis sachets work best for me. I had a bladder distension last year which has helped my symptoms a bit.

    Hope that ramble helped :) xx

  • Hiya :)

    Right ok so firstly Mirena coil. I had my first coil put in at the end of April as I have endo and adeno. Considering I spotted everyday anyway and had some sort of cramps everyday too, I didn't really notice the mirena settling although I was miserable anyway from my symptoms. I had a lap at the end of June to excise my stage 3-4 endo (had one a year before this where they burned it) and during the lap they did a hysteroscopy and found that my womb had half expelled the coil so they replaced it. This was because I have a misshapen womb called a bicornuate uterus and it is known for someone with this to have trouble getting the coil

    To 'sit'. They had also found my endo had spread massively and was on my bowel and bladder and all over my pelvis/ ovaries etc. had I had excision surgery initially I believe that it wouldn't have been so bad. So I have had my second coil in now for just over one month and already I am feeling better. I am still spotting lightly everyday and get cramps here and there but compared to what it was, it's really improved! I can actually do things now and am

    Not bed ridden for a week at a time. My partner and mum have both positively commented that I seem

    A lot happier and relaxed now as I do feel my mental health has balanced. Because my last lap was extensive and they cut a lot out, it has taken longer to recover, but I do feel a lot better this time than I did last time and if I have to have another lap (looks quite likely) I won't even consider burning as it doesn't work for me.

    I was worried that I would put on weight with the coil but I use my fitness app and follow the endo diet and have actually lost 10 pounds. The only downside for me is that I have adult acne anyway from

    The endo and the coil made it a lot worse. However I am on antibiotics for my skin and even that is clearing up nicely.

    I have interstitial cystitis so I didn't feel anything more than I usually do with the endo on my bladder.

    The endo diet helps my

    Bladder symptoms and flare ups and caffeine and alcohol are avoided at all costs (except the odd drink on Special occasions. if you experience chronic UTIs then cranberry juice should be avoided as this can actually irritate your bladder a lot more. I find pain killers, water,

    Hot water bottles and cystitis sachets work best for me. I had a bladder distension last year which has helped my symptoms a bit.

    Hope that ramble helped :) xx

  • I totally agree about the coil. It takes months to get settled in. Best thing ever happened to me!

  • Can anybody tell me if it hurts getting it removed? I have had mine in for 3 years but a scan just recently found it was in the wrong place. I am getting it removed today and am feeling scared. x

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