Hi ladies
I know there are lots of you trying to conceive and having difficulty but please if there are any of you that have sucess stories please let me here all about them. I am a bit worried about my future fertility prospects so I am feeling a bit down. Would love to hear some happy stories to cheer me up. Many thanks xxxx
hi,ive only recently been diagnosed with endo, but my doctor and i feel ive been suffering from it for years,i just put it down to heavy periods,the only time i felt normal was whilst i was pregnant,i have 5 boys of my own,14,11,9, and twins that are nearly 4, i had problems at the end of each pregnancy but they are all healthy now,i hope this has given u some hope. xxx
Yes it has thank you. Do you mind me asking whether your endo is classed as a mild or severe case? I'm glad to hear you've been blessed with 5 children xxx
your welcome,,i have my 2nd hospital app on wednesday,so im still at the very early stages of finding anything out,i also suffer from an ectropian on my cervix,it was only when i had some treatment for that the consultant told me i have endo. so hopefully i find out more on weds,the consultant told me very little, thats why i came on here,up untill 4 weeks ago i hadnt even heard of endo xx
I know how your feeling hun I've not long been told I have endo and the only thing on my mind is if I me and my hubby will be able to have kids I'm going to talk to my nurse tomorrow. When I find anything out I'll keep you updated but from what I've seen on here as long as your not in stage 4 thing should be ok it just might take a bit longer xxx
It's horrible isn't it. We haven't even ever tried to have kids but I wanted to start trying some time soon and now I just can't stop thinking that it may never happen. Good to hear I'm not the only one feeling like this. Thought I was overeacting but you hear so many horror stories and I know I have one tube blocked the other isn't but now I keep worrying what if that one gets blocked too. I think I have quite a mild case though so I'm hoping i'll be ok. Yeah let me know how you get on zow, hope yours is also mild.
Hi, i have endo i only found out i had it last year i have a boy who is 9 and i had been trying to concieve for 6 years i had a laparotomy 6 weeks ago and found out i had early stages of stage 4 my tubes were completely burried but my gynae said the operation went well my tubes are fine there was no need to remove them and i still have good tissue on both of my ovaries so hopefully there is still hope for me x
hi, I have endo and also have a beautiful little girl who is 5. I was told by consultant before I fell pregnant that I may have endo and looking back it was obvious. Because of this I used no contraception as we had been together for a long time and I was pregnant after 6 months! No help needed. please be reassured that lots of people with endo have kids. that said I would have liked another child and it is now too late really so I wish I would have started earlier. if you are sure you want children and your partner feels the same then I would go for it ASAP, don't leave it too late. Good luck xx
thank you xxxx
Hi,
Just wanted to say that its nice to hear about people with endo who do have children, usually we only hear about the problems with endo and fertility. After being diagnosed with Stage 4 endo 3 years ago, we're currently waiting to begin IVF and trying to be positive about the whole experience. It's good to hear that some of you have families......gives me hope for the future! Thank you x x
Hi, I have 3 children despite many years of endo. The first 2 (twins) were helped along by clomid but my younger son was a wee surprise 
good luck x
thank you, good to hear really pleased for you xxx
Hi
I had laparoscopy 4 days ago which showed mild endo. Had ablasion to both sides. My right ovary appeard to be stuck aswell from what I can remember the consultant saying in recovery. Had removal of fimbrial cyst from rt side then Had to dilate the neck of my womb in order to insert the dye through tubes which were a bit resistant but flushed ok with some pressure.
I started trying to conceive in November 2012- bfp in march which sadly ended in miscarriage ?ectopic- they weren't sure as I was so early. Ultrasound showed mass in adnexa.
The whole thing is just a mind field and so frightening.
Great to here all the positive experiences from other girls- gives us hope!
Good luck x
my mum has endo and she got pregnant three times and saw each pregnancy through to birth. She had had no treatment as she had not been diagnosed yet. Hope thats a little hopeful for ya x
Hi Hun though I'd let you know I saw the nurse today she wasn't any help and to be honest neither was GP but I did find out that one of the women I work with has endo and she has two kids she told me it took her a 2 years to conceive her first and 4 years for her second. So it sound like it will take time but it will happen for both of us one day xx
Hiya Zow, Sorry that you didn't get the information you wanted. Yes gp's seem to know very little. Are they putting you on any sort of treatment for the endometriosis? Just wondering because I wasn't offered any treatment or given much information but I am not in very severe pain so that's probably why and don't think my case is very severe. However I was worried about my endo getting any worse in case it caused problems for my fertility so I am now taking the pill continually (tristep) for three months to stop any menstrual bleeding and so hopefully to prevent any further damage and then think we will start trying for a baby. Just wondering whether something like that may be a good option for you if your worried about fertility like I am or are you thinking of trying for a baby now? xxx
Thay have put me on zoladex for 3months once i go back to the hospital in august. Me and my husband are gonna sit down and talk about trying for kids and I'm considering asking for a fertillity test to see where I stand. Xx
I suffer from endo and have had 3 laparoscopies for it. I have suffered with it for the last 10 years but was diagnosed in 2003 after ending up in A&E with suspected appendicitis. After my 2nd lap in 2005 I was told to have a baby preferably within the next year otherwise it probably would never happen. I was devastated at the time as I was not ready to start a family. In January 2009 I found out I was pregnant. We'd been trying to conceive for the past year and I'd been booked in for another lap as it was suspected that my endo was preventing me from getting pregnant. My endo returned straight away after the birth of my first son but shockingly I fell pregnant again when he was 12 weeks old! I had my 3rd lap a couple of weeks ago and am now on injections to simulate the menopause and will most likely have further surgery in a few months time. I have two gorgeous healthy boys and am so grateful as at one point I thought I'd never get pregnant. Don't give up! x
What a lovely story! I am so pleased and happy for you that you still managed to have two children. It's really good to hear. Thanks for sharing. Think it gives me and many others hope. xxx
Hi there,
I have had endometriosis about 15 years, I was diagnosed at 16... I am now 29.
I had had two laparoscopies, and at 22 after my second laporoscopy and laser surgery they told me my endo was very severe and I would never be able to have children. They decided to put me on Prostap injections for 6 months then we would discuss a hysterectomy.
So I ended up on Prostap for 6 months but because I was apparently infertile they told me I did not need contraception. 6 weeks after my prostap run out I had an appointment for a scan to check on the endo.
They did a scan sent me out and said they needed to speak to someone, could I go to the loo and come back as they think they needed to do an internal scan. So panicking I did.
I went back in and had an internal scan, only for them to tell me they couldn't decide whether I had a cyst or a very early pregnancy. So my response was it must be a cyst cos I'm infertile.
I went straight to my mum in tears cos to top all problems with endo off I know had a cyst aswell, but my mum being the see best of both worlds person that she is, took me and bought me a pack of pregnancy tests. We did four before we rung the doctor cos we just couldn't believe the results... POSITIVE.... I WAS PREGNANT!!!
Doctors confirmed it.
Must admit I had a really crap pregnancy I definately wasn't one of those people that bloomed, I was constantly poorly, but I felt it was so worth it... I did not have any of the tests that were offered or find out the sex because as far as I was concerned the baby was a miracle and I was having and keeping whatever I was given.
The birth... oh wow... that was even worse, we nearly lost me and my baby and had to have an emergency c-section where both of us died, but they managed to save us both. (must admit I felt so cheated though because even though I knew it was going to hurt because it was going to be my only chance I so wanted to push but we were both her and that was what mattered) Once I came around from the operation, I found out I had a beautiful baby girl weighing 4lb 9oz... so small my dads hands covered her whole body except maybe half a cm of her head, but then came what the doctors thought was the bad news... my little girl had Downs Syndrome. I was so scared and shocked, I was so niave and did not know much about it or what it meant. But by the next morning when I was finally allowed back to Intensive care unit to see her it didnt matter, she was here, she was alive, and she was my little miracle (Shame her dad didnt feel the same, but thats what you get for not having a planned pregnancy with the right man) My parents were fantastic they brought as much info as they could in everyday when they came to see us, and by the time we got out of hospital a week later I had a better idea about it. My friends and family... wow, I definately learnt how good a group of friends I really had.
Now I was a little coniving when it come to introducing my daughter to friends and family, because I did not want her judging or stereotyping her, I waited until they were actually holding her before I told them she had downs, but by that point they had already fallen in love and there was no prejudice against her.
She is now a beautiful, cheeky very well loved six year old little girl whos smile can melt the coldest of hearts, and she has the most amazing view to the world. She is so loving and as I said before is my little miracle baby. I have a new partner who I have been friends with since before my daughter was born so it just prove just because some people (her dad) believes in the old views where I should have got rid of her) not every body does, and she is treat like royalty be everyone.
If I am honest I do believe that her having downs does have something to do with the prostap injection but that is something that can never be prooved either way, but I really dont care, I have my little angel even after I was told I would never have children.
I am now on the prostap again, been on it now for over 18 months, and have been told YET AGAIN that I am now infertile and am looking at a hysterectomy AGAIN, but before they will do the hysterecotmy they want to do another laporoscopy and excision... so watch this space hehehe, I have won once lets see if I can do it again.
This was a very shortened version hehe but hope its made you feel better
What a lovely story Becky, so happy that you have your little miracle x
This brought a tear to my eye!! (think i'm having one of my emotional days) never the less so happy for you xxxx
Miracles like this gives massive hope! thank you for sharing
Yes that really is a lovely story. It gave me goose bumps. I am so so happy for you that it all worked out well in the end. I honestly think that sometimes these doctors just don't know what they are talking about. They offered my aunty a hysterectomy years ago when she was 28 and it turned out that she was actually pregnant at the time. Her son, my cousin is 18 now. Is surogacy an option for people that are facing a hystorectomy do you know. As i'm just thinking that if they can access your eggs it may me a possibility but I'm not sure if this option is ever offered or discussed? Thanks so much for sharing your story. Hope you do get to do it again. And yes it has made me feel better xxx
endometriosis-uk.healthunlo...
Hi, I feel for you as I've been in the same position for many years and also have a tube blocked. Good things do happen though so never give up hope, see the above link to a post I made a month or so ago giving our story. What isn't mentioned in my link is that after each of my 3 ops I had 6 month Prostap treatments to shut my system down to try and reduce the endometrial growth. The pills you are on will help. We had a fantastic gynaecologist/obstetrician who managed my severe level endo as conservatively as possible to try and preserve my reproductive organs, he only operated when it was absolutely necessary to avoid further damage & adhesions. Our baby girl is five months old next week and we count our blessings every day for her. I hope my story helps and you manage to have a baby one day x
oooh ladies giddy and scared, got a phone call yesterday saying they had a cancellation on monday, so I go in for the lap and excision on monday, eeeek!!! Hope it works... will let you know what happens; and I hope you keep your hopes up and all get your little miracles xxx
Hope it all goes well and you have a good recovery afterwards, yes let us know how you get on xxx
Two little boy miracles 4 me both concieved on a mxture of crones and menopause drugs, both delivered by sections because of scarring fistulas, endo an ileostomy and few oth bits n bobs missing, so yes miracles are true and around every corner... Best of Luck , don't give up xx
Oh yes and they cleaned up endo stuff while hvn section so it did'n come back 4 a year and a half x
Hey I was diagnosed when i was 18 and got told there was a 10% chance of having kids...... I feel so lucky as 3yrs later with no help I found out i was pregnant with my eldest son, and 3 and a half years after my eldest I had my younger son..... unfortunately I have 2 pregnancies that never made it to full term one was an ectopic and when they operated it turned out I was very lucky as my left tube was completely damaged due to my endo and she was surprised as it had been like for a long time she said.
I would say don not give up, yes miracles happen but sometimes they may take a while to arrive.
I really hope you have your miracle love, please let me know how you get on and if you ever need to talk as you can see there are a lot of us out there that are here for each other.
Hey,
I have had agonising pain for nearly 4 years now, i had 3 miscarriages in the space of a year and lost all hope but me and my current partner kept trying and trying and after a year we finally concieved.. It was agony as my little girl grew inside me but it was worth while. I coped by hiring a wheelchair, but after i hit 6months pregnant the pain was gone...
I wish you every bit of luck in concieving hun,
xxx
I have had endo since very early 1990's.
After I got married, we tried for many years. My tubes were blocked, my husband had a low sperm count and most specialists were not very positive in South Africa, I finally found a lady doctor from Germany who said she would unblock my tubes but warned that this is not as easy as it sounds and I may end up losing both. After surgery she showed me photos of my tubes and uterus, they looked the same as the photos I had given her by a previous surgery. But she said that my tubes were not blocked and she felt that if I could afford it, that IVF was an option with my own eggs.
When I asked what she thought could have caused this, she said ' if you believe in God, thank him for the miracle.'
There were times that the bleeding was so severe that I was put on a drip to stop the bleeding and I was anaemic but we continued to try for a baby.
Years later when we had been trying now without IVF, we moved to the UK. I found a wonderful specialist that was willing to help us. My husband was re-tested and this time he had 9 swimming instead of the 7. The specialist was very positive and said that this means you could have nine chances each time.
I had a surgery date to ensure that all was working, tubes clear etc. I had been on Clomed for 6 months and our blood tests were all clear. Finally IVF was in site. I had gone through crippling paid very month with horrendous bleeding.
Week before my surgery, I phoned and told the doctor I think I am pregnant. He asked me to come in for an ultra sound, as he did not believe with my history that this could be possible. I was pregnant and I have a beautiful daughter called Charlotte.
He also said a miracle and maybe both leaving the police force in South Africa had been really good for us and so much less stress.
Pregnancy was difficult with pre-eclamsia and Fibro. I have been trying for a second child after 5 years of Charlotte being on her own. This time I am afraid that we will not be so lucky. End of this month, I am seeing the specialist and a decision is going to be made to remove all possible.
There is always a change for a miracle. She is my miracle and even if we do not have another child we are so happy to have one.
I wish you all the best and hope that you have the oppertunity to have a child
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