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Endometriosis UK
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Zoladex - any success stories out there 🙃

Hi ladies, I've been struggling for over 10 years and finally when my usual GP was on holibobs the locum asked if anyone has checked me for endo. I saw a specialist yesterday and next week I'm having a laparoscopic diagnostic surgery. The question I have is that the gynaecologist wants to put me on Zoladex for 9months and I'm struggling to find any positive experiences with Zoladex on this forum, I'm beginning to wonder if I should stick to the pain though it has possibly reached my liver and stomach and is on the move constantly.

Thank you for reading, any advice on alternative therapies welcome, I have started the endo diet but open to ANYTHING...

Thanks again x

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Hi There, I'm not sure it will help, however i have had the surgery already and tried the pill and the depo injection to control pain. It hasnt worked. My Gyno now wants to be me on the same. However i cannot find anything positive from it either. The side effects are rather scary (Menopause at 32 - Really!). I would say though mine has said you can only have it for 6 months due to the side effects and from my research it recommends no longer than 6 months.

Maybe ask to try the Depo injection, it didnt work for me however everyones body is different. For me its the pain thats unbearable.

Sorry if this isnt helpful x

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Hi, I was given zoladex and it was amazing for me!! 6 months of me normal again! I only had it for 6 months though and as soon as it stopped the pain was back 😔 I did suffer from hot flushes and trouble sleeping but that was nothing compared to what I was normally having to go through, good luck 💕

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Is there a reason why they didn't recommend a mirena coil first? The side effects of that are usually much less.

You definitely aren't supposed to have it more than 6 months at a time due to bone density loss.

I had a particularly bad experience but have a physiology that usually reacts badly to most medication and RV Endo which is usually hormone resistant anyway.

I have seen plenty if other ladies say their benefits in pain reduction outweighed their side effects. The only way to know is to try it as we are all so unique.

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Hi, I was given Zoladex this week along with HRT to take. I have been told to stay on it for a year but the consultant wants to see me every 3 months.

This was my only option as my consultant doesn't believe I have endo even after having a lap last which showed endometriosis. She thinks as the mini pill didn't stop all my symptoms it's down to my other condition I have fibromyalgia. After reading everyone stories on here I know that can't be the case.

We all react differently to medication so maybe Zoladex might be amazing for you and if your worried about the side effects ask to take HRT as well, which is supposed to stop them

Best of luck x

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I was on Zoladex for 6 months. Worked like a charm for me and I had no side effects. Good luck.

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I am 48, had zoladex twice, each time for 6 months and a gap of six months in between. The first time I had livial hrt and had no nasty symptoms. The aim was to shrink endometrioma, which it did, but they refilled as soon as I came off the zoladex, second time was to shrink endo ahead of surgery to remove my ovary. Didn't have livial second time around, had some hot flushes first two months, otherwise fine. I now have no ovaries, so in surgical menopause. I think zoladex was very helpful for me

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Hi

I have just started Zoladex last week and my surgeon has recommended it for 3-4 months to take down the swelling before he does my surgery.

So far absolutely no symptoms and I feel absolutely fine, fingers crossed it stays this way

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I had the zoladex (monthly) for 3 months before putting me on to the prostap 3 (3 monthly) injection I've had 2 injections of this. The zoladex worked for me prostap not so much so ive asked to go back on the zoladex and on wednesday i get my zoladex back till December when I have to see the specialist. But like everyone has said We are all different. Hope it works for you.

Take Care xx

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I think it's definitely worth trying it. Everyone's different and you may get very little side effects.

The good thing is that because it is administered every month you have control over stopping it if you really don't get on with it.

xx

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I had the 6 month course of Zoladex last year. I got the side effects, a surprise at 24 years old! But on HRT which helped a massive deal!

To be honest, it was amazing not having any endo symptoms whilst on Zoladex, however, my endo has returned since being on it so I'm back to square 1!

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