Mirena coil?

[ChelseaJade]

Hi ladies!

Just a quick question really. I was wanting to know what your experience with the Mirena coil has been like.

I've been repeatedly told now that I am currently too overweight to have a laparoscopy(BMI 41.7), so I have been given the option of having the coil fitted.. At first I was very sceptical, feeling like I had been backed into a corner by multiple doctors and made to feel like this was my only option, and also how could they treat me for something without a definitive diagnosis?!

However after a lot of thinking, I do have all the exact same feelings, but I have also come to the conclusion that it may be worth a shot? Even if just to rule it out if it's not for me?

I was just hoping to get some insight from fellow endo-sisters who have been through this before! I also have a tilted uterus, so if anyone has this, and has had the Mirena too, any experiences(good or bad) would be a great help.

Thank you!

[oliviaaa]

I have the coil, the first time I had it my body expelled it but I had it replaced and now it's still in place 6 months later! It's worked well for me as I've had barely any side effects which I got from the pill and injection! Periods have basically disappeared only light spotting and it has significantly reduced my symptoms despite still having some pain, I would fully recommend despite the discomfort which women go through to have it fitted I think it is worth a try (luckily I was asleep when I had mine done!) I also have a tilted uterus and it works fine for me and they said it didn't make an impact! Never feel as though it is your only option though there are many contraceptives which can be used to help endo, having had 3 of them this is by far the best! Good luck xxx

[ChelseaJade in reply to oliviaaa]

Thank you for replying!

I've had the implant when I was 16, and that was perfect for me, but when the three years had come to an end and I went to get another put in, they had changed something in it, so when I had this new one put in, it gave me migraines every single day! From someone that suffers chronic migraines anyway, having one every day absolute flattened me! So I opted for the depo injection(because I'm incredibly forgetful and wouldn't trust myself to have the pill), but my emotions were all over the place with that. I was crying, I was depressed, angry, everything was just conpletely out of whack!

It just makes me wonder how long I have had endometriosis for, because between 16 - 20 I have been on some form of birth control, and since turning 21 absolutely everything is going wrong!

I'm very sceptical about the coil, I think more from my past experiences with birth control, but if it's helps, it helps!

And it's definitely good to hear that having a tilted uterus didn't make a difference. A bit of a personal question, so you don't have to answer, but did you notice that having a tilted uterus maybe made it any more difficult or painful to have put in? I keep telling myself that it can't be anything compared to what I am already feeling, but I can't help but be slightly scared! Xxx

[oliviaaa in reply to ChelseaJade]

I wish I could tell you if it hurt more or less but fortunately I had it fitted during my lap! Research a bit more into but I say bite the bullet and go for it xx

[Mabes]

I have it and I'm happy with it. I had it put in during a lap, and afterwards endured 4-5 months of bleeding, the first couple of months were really heavy. I had a bit of cramping from it right at the start. Then eventually it settled.

Now I get periods but they are erratic and very light. Just to have that in itself is worth it for me as I normally have heavy, long periods that are frequent. From an endo perspective, things are much calmer down there (but I did have excision). My main symptoms now are ovary twinging/pain at times, constant lower back and right hip pain (endo specialist says this is not endo... I don't know!), and some pain with period/ovulation that is quite mild and bearable.

I think the Morena did cause me a bit of emotional roller coaster feelings, but less than with the pill. That had settled a lot and is not really noticeable to others My severe depression around my period had significantly lessened, so that's a positive. I do still get quite moody round my period though.

I think it is worth a try, as if you try it and it doesn't help at least you can say you tried it.

Have you been checked for thyroid problems? - just thinking of your weight precluding you from surgery. Some of us have endo and also autoimmune thyroid disease causing hypothyroidism. There's are great group on here called ThyroidUK, if you are interested.

Xx

[ChelseaJade in reply to Mabes]

Thank you for replying!

I definitely keep telling myself that anything less than the pain I am in now has got to be worth a shot at least!

However I have had had experiences with birth control in the past, so I'm just slightly nervous about it all!

And I haven't been checked for anything thyroid related! I will definitely have to look that one up! I'm fairly new to the endo world, I had no idea what it was 7 months ago, and now I'm here! Xx

[Mabes in reply to ChelseaJade]

I understand. I was actually really anti BCP before getting the Mirena, purely because of previous experiences. I'd been pill free for 9 years and didn't want to try another one, but as I had the excision done I felt that I at least had to try the Mirena to see if it might help. What persuaded me a bit was that the hormones are lower dose than the regular pill and they are delivered locally it the uterus area.

Definitely have a read on ThyroidUK, particularly if you find it hard or impossible to lose weight with dieting.

Xx

[Mabes in reply to Mabes]

P.S. forgot to say I have a retroverted uterus.

[Elwood]

I have a tilted uterus and I am on my third coil. It has been a godsend for me, my symptoms are manageable with it and I don't have periods at all. I am one of the success stories, you will hear horror stories but if you are already going through hell anything is worth a shot I guess!

Good luck xx

[ChelseaJade in reply to Elwood]

Thank you for replying!

Manageable sounds so much better than unbarable!

I'm trying to stay away from googling "Mirena coil" because I just know it's going to come up with all sorts, which is why I wanted to turn to women who have endo, and their experiences with it!

Slightly personal question, but with you having the coil three times now, I'm assuming that having a tilted uterus didn't effect the difficultly inserting it, or how painful it was for you? Xx

[Elwood in reply to ChelseaJade]

I had two done under general during surgery, the second one was without, it wasn't too bad but you have to stay relaxed I clenched up and it made it worse, I would suggest taking paracetamol half an hour before you have it done. If you are concerned though you can ask for local anesthetic xx

[Miracle77]

I have heard mixed reports about Mirena. It seems to suit some women fabulously whilst others hate it. Its not an overnight fix and takes sometime to settle. I found it of less benefit until after my lap. First few months I regularly felt like pulling it out. Still have irregular bleeding with it but i am a lot better. Worth I try I think. More likely to help u if u show willing to give it a shot. Good luck

[FairFacedFairy]

I had mine fitted a month ago. I bled a little after having it fitted up until I had my period around the 27 Dec. It was really painful but I haven't bled since and the cramps have settled. I'm hoping it continues that way. Worth a try definitely!!