Does anyone else have to take regular trips to a+e on here? I'm starting to feel really guilty like they are sighing when I get wheeled in if you know what I mean? I guess I'm just looking for reassurance guys! Much love to you all xxx
Feeling bad: Does anyone else have to take... - Endometriosis UK
Feeling bad
Hello
Are you going for pain relief? I have needed to I don't think I could as never had an emergency, are you sorting out alternative plans like a referral to a pain clinic etc? X
Yeah, I got refered for pain clinic but then they decided to do the lap and I never herd anything back x
I take regular trips to my gp and it's getting to the point the girls in reception know me and know who I need booking in with before I give my details, I try not go to a&e coz I'm usually given a injection and told to go home
Do you not get to the point where you can't take anymore though? Xx
Yes Hun I'm totally depressed every month but I struggle on through it I am back the hospital on Monday I shouldn't of been going till nov but coz I'm that bad they getting me in quicker as I only had op in feb, i have lost my job for 3rd or 4th time coz of it too and now been told be benefits I have to go on the sick
Painkiller wise- I am on slow releasing morphine tablets (zomorph) and take oramorph for breakthrough pain.. But there have been many times when the oramorph just does touch the pain and i've been sent to a&e by my doctor or my mum has called an ambulance.
I know exactly what you mean, it's as if because you're not pouring with blood that you shouldn't be there. It teally gets me down. I feel like a burden when i go to a&e. They always transfer me to the gynae ward after assessing me, and the doctors i see there are just baffled because the cant prescribe me anything stronger. So i end up either staying in for a night or two just so they can keep an eye on me, or being sent home.
Like you they mention pain clinic to me but then i had a lap and nothing has come from it. The gynae consultant i saw at my follow up appointment after my lap was absolutely brill and was honest and said she wouldnt feel comfortable doing more surgery on me as she isn't experienced enough so has referred me to a specialist. (This was great news as me and my partner were going to pay private to see one anyway). I'm currently chasing up the specialist and hoping it's soon that i get my appointment. I can't go on much longer like this.
On a good day, My painkillers take the edge off my pain and it is bearable. But the bad days are horrendous and i hust end up at a&e. And it seems like the bad days are becoming more frequent.
Have you been referred to a specialist? You should request to be, you are entitled to ask. What pain killers are you taking at the minute?
Xxx
Hi hun,
at the moment I'm ending up in hospital alot- last week they had to send out an ambulance because I was having awful stomach & chest pains.
I'd had an incident a few weeks before where a doctor was called to see me on the ward in the middle of the night as my pain was awful. She was so rude & intimidating towards me that I was absolutely terrified & felt like I was wasting the hospitals time (other nurses & patients overheard how she had spoken to me & they were horrified). This had a bad physical effect on me too as I was so stressed & upset that my blood pressure shot up dangerously high
& didn't slow down until lunchtime the next day. The same doctor had also been incredibly rude & disrespectful to the nursing staff on the ward. The nurse looking after me was so kind to me after & both he & the staff nurse on duty assured me that it wasnt my fault & they would make sure this was dealt with.
I talked through this Incident with the patient advice liason service (PALS) & they told me that in no way was I wasting the hospitals time- I should not have been made to feel threatened or intimidated in a place of care. The nursing staff had put in a formal complaint over the incident & the doctor in question was disciplined.
Last time I was in a&e I was still worried I was being looked at as if i was wasting time but i spoke to a doctor who was dealing with my case & she said that I did the right thing by coming in & assured me I was in the best place as they had some huge concerns & it was important they were looked into.
Please don't ever feel like you are wasting hospital time- if you've got a problem then it's better to get it looked into than running the risk of leaving it. If you're being treated in a way that makes you feel uncomfortable then either go through PALS or talk to the doctor treating you. Good luck hun xxxx
Hi - you have no reason to feel guilty. People who go to A&E because they are too drunk are the ones to feel guilty. I was taken to A&E by ambulance after collapsing at work and when I said I had extensive endometriosis the paramedic said 'endo...what?'
Luckily the consultant was able to access my notes and scans and he actually came over and I was incredibly brave. I always keep a list of my medication, condition and personal circumstances in my bag to ensure that medics are able to understand my situation.
Just because endo can't be seen doesn't mean it doesn't hurt. If you need help you are entitled to it xxx