Hi pugy! I'm currently 10 days post op...I had partial cystectomy. They removed a nodule of endo the size of a dessert spoon that was sitting in between bladder and uterus. It had also invaded through my bladder wall. It was combined gynae and urology surgery and both consultants were pleased with the way it all went.
I'm 26 and wanting a family so the surgery was essential as I was unable to fall pregnant with it there. I was terrified... as I was told hysterectomy was a possibility if things went wrong! I'm pleased to say that I'm feeling good. The surgery was done via laparotomy, so I have a c section style scar, which is tender but not painful. The worse thing is the catheter. Because the bladder was opened, endo removed and stitched back up they need to ensure that the bladder does not stretch so a catheter is necessary for 10-14 days. Mine will be out on wed all being well.
So far I have no regrets....this had to be done. I consider myself lucky that apart for 2 tiny spots on my pelvis (that we're lasered also) I'm free of endo, for a time anyway!
And yes this type of bladder infilrating endo is rare. In 15 years my consultants had seen 4 cases like mine, I was the 5th! All patients had a partial cystectomy, and were a success...fingers crossed mine is too. My advice would be to find a surgeon (if you haven't already) that has operated on this type of endo before. Good luck with everything. Xxx