I had suffered with pcos since I was 15- the suspicion of endo had been mentioned but never fully investigated. I had been suffering from agonizing heavy periods, mega mood swings, joint & back pain, tiredness, headaches &serious bowel problems.
I suffer from other medical problems (seizures, hormonal problems, enlarged pituitary gland & sight loss- am registered disabled as all of these have messed me right up) for the stomach problems they tested me for the whole coeliacs disease, food intolerence, diabetes ect & they eventually put it down to IBS. Last august I was rushed to a&e with crippling stomach pains. The doctor told me I needed go to my gp & ask to see a gynaeocologist as it sounded like I could have endometriosis.
I saw the gynae at the beginning of january. He did an ultrasound & mentioned that my bowels looked quite full of gas/liquid. He referred me for a laparoscopy as he said endo is almost impossible to detect on a simple scan.
I had the laparoscopy in April- there were some complications during as my oxygen levels dropped. When I woke up I was told that they had found a large amount of endo- on my uterus, bowels & generally in the abdominal cavity. They weren't prepared to try & remove it- just took some for biopsy & I was told I would need major surgery.
A day after the op I developed an infection which responded well to antibiotics. Within the next couple of weeks I was rushed to hospital twice with suspected infections, dehydration & severe pain (both times I was given intravenous antibiotics & fluids. A scan showed I also had fluid around my right ovary.
At my appointment with the consultant last week I was told that the endo was growing in lots of flatter patches rather than clumps, which makes it harder to remove. She said I'm being referred to a bowel specialist as well still needing to be under the gynae & obstetrics (think thats what it is called?)
She told me I was going to need major surgery (said loads of stuff about bowel resections, possibility of stoma bags, long hospital stays ect) which really scared the c**p out of me!
Got a phone call today from the hospital- apparently I have been given an urgent referral to the bowel specialist who wants to see me next week. I am really bricking it to be honest as this condition has been ruining my life. Since august I have had terrible, constant pain which has been crippling me, & since the laparoscopy I've been almost housebound because of the pain & tiredness. I'd really appreciate it if someone could give me advice as I am nearly 20 but feel like an old lady